Very nice Rheumatologist

[tpotter]

My DH's ASO levels came back elevated after I had bugged him for weeks to get them tested (both for my PANDAS kids' sake as well as his.) He has RA and mitral valve prolapse, and I thought he might have had RF in his past and/or he's still carrying around the strep bug.

 

So, he made an appointment with his rheumatologist, and I went with him, because I have the "honorary" PhD in strep related autoimmune disease

 

The man actually listened to the whole situation. He listened to my concerns about my DH, and that his RA might be helped by abx. He listened to the fact that my DS is getting IVIG in 2 weeks, and I don't want to subject him to possible strep when he gets home. He actually listened!!!

 

He even asked if he should give my DH penicillin ("Is that still the medicine of choice?" he asked.) I told him that it wasn't, and that typically they are now using azith (because of immunomodulation and antinflamatory) as well as Augmentin XR (my boys take that.) He was thinking that we had to do more tests and see more specialists before prescribing, but I when I told him that sometimes the doctors take the leap of faith, and try the abx to see if it works. He said fine, and prescribed 30 days worth (suggested my DH also see an immunologist, which I've been trying to get him to do, too.) Now that his rheum. sugggested it, he's going to! His rheumatologist is rather excited by the possibility that this might work.

 

Yeah! I'll keep you all informed.

[Kayanne]

Awesome...definitely keep us informed.

[peglem]

That is so cool. Sometimes you just never know until you try! (I mean both getting docs to listen and abx)

[Phasmid]

Yay!

[kimballot]

I am sure that your honorary PhD in strep related autoimmune disease was the reason this went so well. Congratulations on finding and educating this doc!!! You have worked hard to get this right and this is one time it has paid off!! I hope all goes well with your upcoming IVIG!

[saidie10]

My DH's ASO levels came back elevated after I had bugged him for weeks to get them tested (both for my PANDAS kids' sake as well as his.) He has RA and mitral valve prolapse, and I thought he might have had RF in his past and/or he's still carrying around the strep bug.

 

So, he made an appointment with his rheumatologist, and I went with him, because I have the "honorary" PhD in strep related autoimmune disease

 

The man actually listened to the whole situation. He listened to my concerns about my DH, and that his RA might be helped by abx. He listened to the fact that my DS is getting IVIG in 2 weeks, and I don't want to subject him to possible strep when he gets home. He actually listened!!!

 

He even asked if he should give my DH penicillin ("Is that still the medicine of choice?" he asked.) I told him that it wasn't, and that typically they are now using azith (because of immunomodulation and antinflamatory) as well as Augmentin XR (my boys take that.) He was thinking that we had to do more tests and see more specialists before prescribing, but I when I told him that sometimes the doctors take the leap of faith, and try the abx to see if it works. He said fine, and prescribed 30 days worth (suggested my DH also see an immunologist, which I've been trying to get him to do, too.) Now that his rheum. sugggested it, he's going to! His rheumatologist is rather excited by the possibility that this might work.

 

Yeah! I'll keep you all informed.

 

It is so great when the doctors listen to us!!! Us parents are the captains of our families ship and we truly should be the ones driving the boat to get the medical help our family needs! Great job and keep us posted!!!!

[tpotter]

thanks everyone.