Vacation

[Mary M]

Hang in there...our last vacation was a disaster at first but once she got settled things improved.

[saidie10]

So, we had a family vacation planned for almost a year. When my son started with his tics I really wanted to cancel, but DH wouldn't hear of it. So, I agreed to go. The past few weeks DS has been doing so well with the diet changes and supplements, not sure if it's that or just waning, but the tics have been very minimal and I actually started to get excited about vacation. So, we left today and DS did great on the 6 hour car ride. Then we get here and he is ticcing like crazy, it's like every tic he's ever had started pouring out all at once and I just want to cry my eyes out. My husband and older son are being so great about it, but I'm a wreck. I don't want to sound like a complaining jerk, but it's just so unfair. Why now? Was a week of mild tics on vacation REALLY too much to ask?

 

I really thought I was coming to terms with this, but I guess I'm not as adjusted as I thought.

 

Thank you for listening. I really do find solace in knowing there are other people in this world that can sympathize with me and my situation.

 

~Lynn

 

So sorry Try and remember that YOU need a vacation too and just relax and enjoy yourself! I know that is easier said than done but give it a shot!!! Enjoy your vacation!!!

[Betty04]

As many others, I have been there.... the most helpful thing a friend asked me when I was upset my son's tics returned was, "is he happy?" If your son is happy and enjoying vacation, try and take some comfort in that! Wish I could say something more to help, but obviously too many of us understand. Take care of yourself!

[forjpj]

I hope it gets better and he starts to relax so you can relax!! If you are there with family members see if you can get some time away from him. Try to get a break from that strange mother-pandas child dynamic...that can't live with, can't live without scenario! Oh yeah...and go have that corona...ohhh...maybe you should have a different cocktail every night just to make it interesting!!

[thereishope]

Lynn, in many marriages on this borad, the husband and wife "deals" with the illness and the stress diffrently. I worry enough for myself, my husband and everyone else surrounding us. I mean, he worries too, but maybe he's a silent worrier? Where it does encompass my thoughts, different scenarios run through my mind, and I will talk about it out loud with him. Sometimes, I think he knows deep inside that I will do enough work, research, etc for the two of us and he just doesn't have to worry about it as much, I don't know.......

 

Did you say you tried Ibuprofen with your child? If not, try it. It really does work for a good portion of PANDAS kids.

Edited June 12, 2010 by Vickie

[bgbarnes]

I don't have any words of wisdom to add- but know we are thinking of you and hope that you are able to step back and enjoy yourself as much as possible! Take some time for yourself- if you can go for a walk etc... it is your vacation too- I promise the worry will be there when you get back (OK so I am repeating what my husband tells me daily- I am still working on it myself!)

Brandy

[Rowens1214]

Hi Lynn, i hope things start to improve for you soon. I know what you are going through. I want to get excited about family vacations etc but i start to worry about the what ifs and just end up stressing myself and kids to the maxx. My son tics more when he is excited about going on vacation, new places etc.

 

Like another poster said, if your son is happy and relaxed then try and enjoy your time. I know its so so hard to do.

 

We are leaving on a vacation next Sunday and I am already thinking about the what ifs. But i have to stop myself and and think positve and enjoy myself and let my kids have fun.

[tantrums]

I hope it improves for you all and you can enjoy yourselves. Hang in there and try to focus on the positive aspects of the trip. I would think it's partly excitement. That gets my son every time. he is a mess today bc it's his birthday and his party isn't until 5.

 

My DH and I are currently at odds about our planned vacation - a trip to Maine. It's a 6 hour ride and then the trip within Maine involves a LOT of time in the car. We've always enjoyed it, but the car is DS's LEAST positive place right now and I just don't know how it is going to go. I'd rather stay closer to home and do more active things with him this year. But... on the flipside, we need more of the relaxing atmosphere after the past year we've all had. Don't know WHAT to do!

 

Please do update us when you can and let us know how you are making out.

[dut]

hi - not to sound crazy but could you or your dh or other ds have strep? could being cooped up in super close contact in the car with you for 6 hours have caused a flare? some PANDAS kids react to strep in others , they don't even need to get the full blown infection..... almost like kids who react to peanuts in the environment and don't even need to eat them.. just a thought.. perhaps you have a strep carrier in the family

[tired mom]

Hope that by the time you read this things have gotten better. I do feel for you because we had a really bad vacation one year too. It was during an exacerbation at that time and I thought the beach would be a calm place for her. Anyway since then we have enjoyed other vacations. Things will get better. Relax and enjoy your family!