A New Beginning

[tired mom]

Tonight at 6 I will be in a stadium filled with hundreds of people watching my daughter receive her diploma. Wow! who whould have thought we would have survived the last 8 years. I will be the proudest mother there knowing what she has endured during her school years. I know how hard it must have been to hide her ocd and deal with a brain that at times all circuits were firing.

I read this forum daily and have experienced what most have gone through. I can tell you that when she had her second exacerbation her therapist felt that I should place her on disability because she was in a really bad spot then. I refused knowing deep in my heart this child would overcome this. She is by no means 100% but I would have to say 75% better now. Myco last fall was a real setback.

My dd first episode happened at 10 and was very severe. I knew only of black and white pandas then and treated for ocd. Being scared of ssri,s for a 10 year old I only gave her a very small dosage and stopped it after 6 months. Symptoms vanised ,and she remained fine for 18 months. Symptoms came on again after a strep infection and so our journey began. I wonder till this day why her first episode went into remission for a year and a half without any treatment.

I am also wondering that when her IgM's are in normal range again will she be fine again?? I have never treated with long term abx or done ivig. I have witnessed a saw tooth pattern during her teen years and at times was very hopeful that she was outgrowing it. She has just finished 3 months of biaxin which was treating the myco(very high levels) and will get retested next week.

I hope that this evening with the closing of one door another one opens that holds a bright and happy future for a very beautiful young lady!

[Fixit]

Please give her a big Bear hug from all the Pandas(bear)pitand parents..because we know too, how much more she had to do to get where she is!!!!!

[tired mom]

Please give her a big Bear hug from all the Pandas(bear)pitand parents..because we know too, how much more she had to do to get where she is!!!!!

Thank you from the bottom of my heart. I expect to take alot of tissues this evening, not only for me but for my husband who I think is now really showing all that has been bottled inside for so long.

[Fixit]

Please give her a big Bear hug from all the Pandas(bear)pitand parents..because we know too, how much more she had to do to get where she is!!!!!

Thank you from the bottom of my heart. I expect to take alot of tissues this evening, not only for me but for my husband who I think is now really showing all that has been bottled inside for so long.

 

i bet!!!!! you might want to bring him his own box

[saidie10]

Tonight at 6 I will be in a stadium filled with hundreds of people watching my daughter receive her diploma. Wow! who whould have thought we would have survived the last 8 years. I will be the proudest mother there knowing what she has endured during her school years. I know how hard it must have been to hide her ocd and deal with a brain that at times all circuits were firing.

I read this forum daily and have experienced what most have gone through. I can tell you that when she had her second exacerbation her therapist felt that I should place her on disability because she was in a really bad spot then. I refused knowing deep in my heart this child would overcome this. She is by no means 100% but I would have to say 75% better now. Myco last fall was a real setback.

My dd first episode happened at 10 and was very severe. I knew only of black and white pandas then and treated for ocd. Being scared of ssri,s for a 10 year old I only gave her a very small dosage and stopped it after 6 months. Symptoms vanised ,and she remained fine for 18 months. Symptoms came on again after a strep infection and so our journey began. I wonder till this day why her first episode went into remission for a year and a half without any treatment.

I am also wondering that when her IgM's are in normal range again will she be fine again?? I have never treated with long term abx or done ivig. I have witnessed a saw tooth pattern during her teen years and at times was very hopeful that she was outgrowing it. She has just finished 3 months of biaxin which was treating the myco(very high levels) and will get retested next week.

I hope that this evening with the closing of one door another one opens that holds a bright and happy future for a very beautiful young lady!

 

I have tears reading this as I can see the journey has been long for your daughter and your family. Congratulations to a very strong young lady!!!!

[tired mom]

Tonight at 6 I will be in a stadium filled with hundreds of people watching my daughter receive her diploma. Wow! who whould have thought we would have survived the last 8 years. I will be the proudest mother there knowing what she has endured during her school years. I know how hard it must have been to hide her ocd and deal with a brain that at times all circuits were firing.

I read this forum daily and have experienced what most have gone through. I can tell you that when she had her second exacerbation her therapist felt that I should place her on disability because she was in a really bad spot then. I refused knowing deep in my heart this child would overcome this. She is by no means 100% but I would have to say 75% better now. Myco last fall was a real setback.

My dd first episode happened at 10 and was very severe. I knew only of black and white pandas then and treated for ocd. Being scared of ssri,s for a 10 year old I only gave her a very small dosage and stopped it after 6 months. Symptoms vanised ,and she remained fine for 18 months. Symptoms came on again after a strep infection and so our journey began. I wonder till this day why her first episode went into remission for a year and a half without any treatment.

I am also wondering that when her IgM's are in normal range again will she be fine again?? I have never treated with long term abx or done ivig. I have witnessed a saw tooth pattern during her teen years and at times was very hopeful that she was outgrowing it. She has just finished 3 months of biaxin which was treating the myco(very high levels) and will get retested next week.

I hope that this evening with the closing of one door another one opens that holds a bright and happy future for a very beautiful young lady!

 

I have tears reading this as I can see the journey has been long for your daughter and your family. Congratulations to a very strong young lady!!!!

Yes it has been a long journey but to tell you the truth one minute she was 10 and I swear all I did was blink and she was 18...I hope the medical field becomes more educated with this and helps all of you with young children. I hope your journey is much shorter.

[forjpj]

Congratulations to everyone and enjoy!!!

Sarah

[kimballot]

Congrats to you and to your daughter! You are an inspiration!