Pfeiffer visit feedback

[Claire]

My own candidias was from antibiotic use over 20 years ago!

 

The spit/saliva test can be done at home. Great Plains has a urine test.

 

I am out for the evening now--will post tomorrow.

[Chemar]

We had blood tests for candida.

 

the spit test is a good primary home diagnostic.

 

excellent book on "The yeast Syndrome" by Morton Walker and John Trowbridge

 

Capryllic Acid is a supplement that we used in conjunction with a special diet to eliminate the candida infection.

 

A vast number of people have candida as the underlying cause of their poor health and dont even know it.

many mainstream doctors dont even consider it!!

getting candida under control is a remarkable boost to health and well being!

 

If it is persistant, it can be very helpful to have colonics.

 

gotta run!

[Guest]

I did do the spit test. Some saliva sunk to the bottom, specs were in the water, and strings traveled down to the bottom. From this do you guys think it would be a good idea to get tested for yeast? If so what test and lab do you suggest? How accurate is this test? Has anyone tried it that doesn't have a yeast problem to compare results and their saliva floated?

[Claire]

Yes I recommend getting tested. My DAN doctor thinks the spit test actually has fewer false negatives than the GDSA stool test--since yeast clumps in stool and you can miss it in the sample.

 

Phyl and I both used the Great Plains Organic Acid profile test. I love this test as they check for glutathione levels also.

 

Here is the site (doctor's sign needed for at home urine test that you mail in)

 

http://www.greatplainslaboratory.com/

 

This describes what the analyze

http://www.greatplainslaboratory.com/test1comp2.html

 

Claire

[Jennifer]

Claire,

 

I just read your post, we just got back home last night. Our visit went very well. The nurse that interviewed us said that she had really high hopes for our son, he was the "classic" child the clinic was even started for.

 

I know what they say about tics, but in my 3 year journey with our son I have come to the conclusion that tics can be caused by so many different factors and another thing to consider as well is if they are "true" tics or OCD or self stimulatory behaviors? It was very easy for the neurologist to label our son with Tourett's Syndrome-his diagnosis couldn't have ben farther from what has been really going on.

 

At this point in time tics are a complete non-issue with our son I have to say that our big break came with the fatty acid and liquid mineral supplementation. We are still struggeling with moods and melt-downs, heavy metal overload, sulfation issues, yeast and the list goes on.

 

I agree that it is expensive, I think alot of it may be lab?

 

Claire, I really hope that the test results shed some more light for your son. Also, the doctor mentioned that parents have been having great success with Houston Enzymes for casein/gluten breakdown. Some parents are not even following the GF/CF diet anymore with these enzymes.

 

Keep us posted on the test results.

 

Jennifer

[Claire]

Jennifer,

 

 

Can you please give me more information on Houston Enzymes? As you know the wheat/milk restriction is our biggest thing and I am EXTREMELY interested in anything that works here!! I tried to find them on the internet and didn't do so well. I did find this: http://www.enzymestuff.com/offdiet.htm

 

Where does one get them? Is there some protocol, e.g. MT promotion first, or can you just start taking them and see if they work for you?

 

I bought some Enzymes with DPIV from our doctor, I believe from Klaire Labs. I wonder if this is different from Houston Enzymes, do you know? I only really tried it with wheat once and unfortunately too many other factors were going on to evaluate. The excema is our measuring rod.

 

It does make sense--for kids missing the proper enzymes, just give them the enzymes. But Dr McCandless made a big deal about only taking it for 'accidents'.

 

You know I agree re misdiagnosis of TS! So glad it went well for you. By the way, I am still glad that I went--I want those tests done. I was just frustrated that they didn't allot time for me to ask questions of the doctor, and the nurse had no answers.

 

Claire

[Claire]

Okay,

 

I checked the internet more and found it.

 

Here is the storefront.

https://host6.websitesource.com/houstonni/M...t2/merchant.mvc

 

 

The product I am going to buy their brand and try it out.

http://houstonni.com/Merchant2/merchant.mv...Category_Code=E

 

 

The classic "original" with rice bran filler. If you wish to order this product with cellulose instead of rice bran, please order item HN004s. AFP Peptizyde (capsules, with rice bran)

 

Quantity in Basket: none

Code: HN004

Price: $22.00

 

Shipping Weight: 3.00 Ounces

 

 

Quantity:

 

An All-Fungal Protease Version of Peptizydeâ„¢

 

High-Potency Enzyme Combination for Digestion of Food Protein

High Dipeptidyl Peptidase IV (DPP IV) Activity Without Papain

Increases Breakdown of Casein, Gluten, Soy Protein

Odorless and Tasteless Version of Original Peptizydeâ„¢

Safe, Non-Toxic Alternative or Supplement to GFCF Diet

 

For those using Peptizydeâ„¢ successfully, there is no need to change to AFP Peptizydeâ„¢. AFP Peptizydeâ„¢ was designed for those who could not tolerate the original Peptizydeâ„¢ formulation.

 

AFP Peptizydeâ„¢ was developed in response to parents request for a high DPP IV-containing enzyme product that did not include fruit-based enzymes such as papain or bromelain. Like Peptizydeâ„¢, it is a combination of three different proteolytic enzymes isolated from fungal plant sources. Each enzyme has a unique set of peptide bonds it prefers to break, so the combination of these enzymes allows much more efficient means of quickly and thoroughly breaking down (hydrolyzing) proteins to its smaller components. The enzymes in AFP Peptizydeâ„¢ work only on food proteins, not carbohydrates, fats, or other compounds, and do not interfere with medications or other supplements (unless they are also proteins, which is extremely unlikely). AFP Peptizydeâ„¢ may be used in combination with other enzyme products, such as HN-Zyme Prime and or No-Fenol. One would use either Peptizydeâ„¢ or AFP Peptizydeâ„¢ for protein digestion based on 1) known sensitivities to papain or, 2) a child objecting to the odor of Peptizydeâ„¢ (which is due to the presence of papain).

 

The aminopeptidase enzyme dipeptidyl peptidase IV, or DPP IV, is able to hydrolyze and inactivate the exorphin peptide, casomorphin. However, for maximal protein breakdown, it is not useful alone, and should be combined with other proteases with different and less stringent peptide bond specificity. For this reason, AFP Peptizydeâ„¢ also contains two other fungal proteases with high activity in acid conditions. These enzymes are present in AFP Peptizydeâ„¢ in high amounts for the purpose of quickly hydrolyzing proteins while the food is still in the stomach. The ability of AFP Peptizydeâ„¢ enzymes to withstand the low pH of the stomach and remain active under acidic conditions allows hydrolysis of casein and gluten prior to entrance into the small intestine. Casein and gluten, in the presence of pancreatic enzymes in the duodenum, can produce exorphin peptides that may be readily absorbed from the intestine (these peptides are not absorbed from the stomach). AFP Peptizydeâ„¢ supplements the "normal" hydrolysis of casein, gluten, and other food proteins such that the exorphin peptides are not produced because the specific cleavage pattern to produce these peptides is altered.

 

 

Claire

[Guest Guest_Jennifer]

Claire,

 

I just ordered the Houston Peptidaze and No-Phenol today. The doctor said that something about the formula in Houston enzymes that really seems to be working.

 

The person I talked to today at Houston Nutraceutics said that it is not necessary to go gf/cf. If you are allready following the diet than start re-incorporating those foods gradually, and if your not on the diet take the enzymes with each meal 1-2 a day and add an extra one if the meal contains gluten or casein. He said you kind of need to play around with the amounts. He also said there are families that have had real success w/o the gf/cf diet with these enzymes. The price wasn't too bad either. The ones that Dr.McCandless recommends are well over 40$. I got both types of enzymes plus shipping for 44$.

 

Sorry you didn't get to spend much time with the doctor. We were the last appointment of the outreach which may have been why we were able to spend a fair amount of time with the doctor. Also did you have an appointment with the doctor or the physicians assistant? The doc we saw was Dr. Norman.

 

Jennifer

[Claire]

Hi Jennifer,

 

I just ordered both also. She told me 1/meal for 3 meals a day. I suspect it won't happen during lunch at school.

 

FYI I got the AFP type due to less smell and people who have mold issues.

 

She said wait 10 days (and monitor) before starting the no-fenol.

 

My plan--it arrives tomorrow night.

 

AFP peptizades for 10 days (no diet change--we have some cheese already though) She says take it each meal, even if no gluten/casein

--this way I get a 'baseline'.

 

Add the no-fenol (she said only with the offending fruits (by the way, she is part owner and didn't know about amines). Watch for change. We do berries and grapefruit anyway.

 

Later challenge with wheat--e.g. Thanksgiving dinner.

 

Ok, so I will post my results. Please do post if you notice also. They say it takes up to 2 months though.

 

You and I are not the best test case for the no-fenol because no tic reactions. But the wheat impact does seem to be noticeable in energy level. But on the braintalk gluten free board, a poster said that enzymes helped with their child's corn/occasionally casein issues--even though she doesn't challenge with wheat. I wonder about all the corn we have now--even if only every 4 days.

 

I am starting the Klaire Serenaid for the next 2 days until the other arrives.

 

Claire

 

ps Thanks again for the Houston Enzyme mention. Our DAN doctor recommended the Klaire Serenaid Enzymes (initially created by the same Dr. Houston) which I have had on hand for 2 months, and I have discussed this on the gluten-free board, but somehow Pfeiffer's recommendation has impact--they deal with so many ASD patients.