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Posted

Hello

I've posted before on here and got a lot of great help. To summarize I'm 29 and suspect I'm dealing with the results of PANDAS (diagnosed at age 11ish with tourettes/OCD/ADD, at the same time had a strin of antibiotic strep for at least a year)

I went to the dr and tried to explain this, she was receptive but not familiar with the PANDAS diagnosis, she did some blood tests for various infections, they came back mostly normal including stret Titers (was 76 which I'm told is normal).

The only odd thins was my Eosiohil reading, which was 14.

She said this usually indicates some kind of allergy, I don't have any allergies that I know of, and I don't seem to exhibit seasonal allergies.

Anyway I don't know if she did the right tests or if these results mean anything, and insight is greatly appreciated!!

THANKS!!!

-pete

Posted
Hello

I've posted before on here and got a lot of great help. To summarize I'm 29 and suspect I'm dealing with the results of PANDAS (diagnosed at age 11ish with tourettes/OCD/ADD, at the same time had a strin of antibiotic strep for at least a year)

I went to the dr and tried to explain this, she was receptive but not familiar with the PANDAS diagnosis, she did some blood tests for various infections, they came back mostly normal including stret Titers (was 76 which I'm told is normal).

The only odd thins was my Eosiohil reading, which was 14.

She said this usually indicates some kind of allergy, I don't have any allergies that I know of, and I don't seem to exhibit seasonal allergies.

Anyway I don't know if she did the right tests or if these results mean anything, and insight is greatly appreciated!!

THANKS!!!

-pete

Posted

They are a type of white blood cell, and when high, do indicate allergy. The main thing I've heard it with is: Eosonophilis Esophagitis (EE), which causes a person to have a lot of stomach problems (caused by allergy). In fact, to figure out what is going on, and then tx it, it is frequently necessary to do an elimination diet.

 

If your dr hasn't already, ask if it is coming from the gut or somewhere else. Then see an allergist/immunologist, and if from the gut, a gastroenterologist, too. If you have EE, it definitely needs to be treated.

 

Good luck.

Posted (edited)

Thanks tpotter,

the weird thing is, I haven't had any stomach problems... according to wikipedia it could also be a reaction to some kind of parasite... anyone else have experience with this related to PANDAS? could be a completely separate issue I suppose... just what I needed!

 

Also, wikipedia says this:

"After maturation, eosinophils circulate in blood and migrate to inflammatory sites in tissues"???

-PEte

Edited by PEte
Posted
Hello

I've posted before on here and got a lot of great help. To summarize I'm 29 and suspect I'm dealing with the results of PANDAS (diagnosed at age 11ish with tourettes/OCD/ADD, at the same time had a strin of antibiotic strep for at least a year)

I went to the dr and tried to explain this, she was receptive but not familiar with the PANDAS diagnosis, she did some blood tests for various infections, they came back mostly normal including stret Titers (was 76 which I'm told is normal).

The only odd thins was my Eosiohil reading, which was 14.

She said this usually indicates some kind of allergy, I don't have any allergies that I know of, and I don't seem to exhibit seasonal allergies.

Anyway I don't know if she did the right tests or if these results mean anything, and insight is greatly appreciated!!

THANKS!!!

-pete

 

A few years back my eosinophil were high during a time I was having stomach pains (peptic ulcer) which was treated. Now it is fine. Andrea

Posted

You're welcome.

 

I would ask your dr. If s/he doesn't know, ask for a referral. Ask if you should see an allergist/immunologist, or someone else. But, from what I know (I know 2 children with EE, and my own children were tested for it...negative, thank goodness...that's the stomach one), it can indicate something serious. So, I wouldn't ignore it, but certainly check it out a little more thoroughly.

 

 

Good luck.

 

 

Thanks tpotter,

the weird thing is, I haven't had any stomach problems... according to wikipedia it could also be a reaction to some kind of parasite... anyone else have experience with this related to PANDAS? could be a completely separate issue I suppose... just what I needed!

 

Also, wikipedia says this:

"After maturation, eosinophils circulate in blood and migrate to inflammatory sites in tissues"???

-PEte

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