Intuniv any one tried it?

[melanie]

just gave him 1mg dosage Im nervous a little

[trggirl]

I really hope it works out for you! I really wanted it to work for us. I was so disappointed.

 

 

im sure I will be dissappointed too no med has ever helped so what the heck what was the 1st bad thing you saw? Hes going to start it at night so if hes tired he will atleast sleep

 

keep your fingers crossed

 

melanie

 

 

The first thing we saw was the nightmares and night fears. She was very tired the first couple of days so hopefully he will sleep well tonight.

[mom md]

Wanted to see if IVIG worked first and see if it could bring him to "normal" without any meds. She also said it is nice to keep something in your back pocket.

We went to see someone who is considered the top pediatric neurologist in this area. She recommended this drug as a possibility in the next year or two if we felt some ADD/impulse issues were left from the disease. She said it helped kids with tics control them and did not have any neuro side effects which is nice. She felt like it was a great option. I would definitely try it if needed.

 

 

mom...why a year or 2 from now.....too young...or want to see if ivig works first

...how old is your child now?

[MomWithOCDSon]

So, Melanie . . . how was DS's night and morning with the Intuniv?

[melanie]

today wasnt his best day but not his worst.Hes cursing alot but he told me his whole class was introuble today .He seems ok a little short ,HW wasnt easy ,day 2 ,lets see how tomorrow goes.

 

Melanie

[mom md]

My neurologist says it takes a while for the level to get high enough in the blood at a steady state to have an effect. She made it sound like it would take a few weeks to see...hang in there and keep posting your findings!

[melanie]

My neurologist says it takes a while for the level to get high enough in the blood at a steady state to have an effect. She made it sound like it would take a few weeks to see...hang in there and keep posting your findings!

 

 

This is where the medication thing falls appart,1mg for a 140 lb 16 yr old? I was reading (again) on the web about case studies and like noone was on 1 mg it seemed everyone was on more. Will it help at 1mg? How long does it take?

 

Im not giving him the klonipin meanwhile,MD said to hold off unless we have to go somewhere and he really is anxious,Like a party or something.

 

Melanie

[MomWithOCDSon]

My neurologist says it takes a while for the level to get high enough in the blood at a steady state to have an effect. She made it sound like it would take a few weeks to see...hang in there and keep posting your findings!

 

 

This is where the medication thing falls appart,1mg for a 140 lb 16 yr old? I was reading (again) on the web about case studies and like noone was on 1 mg it seemed everyone was on more. Will it help at 1mg? How long does it take?

 

Im not giving him the klonipin meanwhile,MD said to hold off unless we have to go somewhere and he really is anxious,Like a party or something.

 

Melanie

While you may not want to wind up at 1 mg., it seems wise and common to start with a low does and see what it does to a person before increasing. My 130-pound DS13 is on 2 mg. now, but he was on the 1 mg. for about one month before we moved it up to 2 mg., and though the maximum dosing, I think, is 4 mg., we've left it at the 2 mg. mark for the last 4+ months.

 

As for how long it takes to see results . . . that probably varies by person, also, but we saw it much quicker than several weeks. It was a matter of 2 or 3 days before he was reporting feeling more focused and less antsy in class. Then it was about 7-10 days before his system adjusted to the modulation of his blood pressure the medicine can cause and he stopped feeling drowsy in the afternoons.

 

We're all so anxious to find a "magic bullet," but give it a few days and see how it goes. Maybe your doctor will want to up the dose eventually, too.

[melanie]

My neurologist says it takes a while for the level to get high enough in the blood at a steady state to have an effect. She made it sound like it would take a few weeks to see...hang in there and keep posting your findings!

 

 

This is where the medication thing falls appart,1mg for a 140 lb 16 yr old? I was reading (again) on the web about case studies and like noone was on 1 mg it seemed everyone was on more. Will it help at 1mg? How long does it take?

 

Im not giving him the klonipin meanwhile,MD said to hold off unless we have to go somewhere and he really is anxious,Like a party or something.

 

Melanie

While you may not want to wind up at 1 mg., it seems wise and common to start with a low does and see what it does to a person before increasing. My 130-pound DS13 is on 2 mg. now, but he was on the 1 mg. for about one month before we moved it up to 2 mg., and though the maximum dosing, I think, is 4 mg., we've left it at the 2 mg. mark for the last 4+ months.

 

As for how long it takes to see results . . . that probably varies by person, also, but we saw it much quicker than several weeks. It was a matter of 2 or 3 days before he was reporting feeling more focused and less antsy in class. Then it was about 7-10 days before his system adjusted to the modulation of his blood pressure the medicine can cause and he stopped feeling drowsy in the afternoons.

 

We're all so anxious to find a "magic bullet," but give it a few days and see how it goes. Maybe your doctor will want to up the dose eventually, too.

 

So It took how ling 1 week to see anything?I know its not a magic bullet but I just want to take the edge off ..Have you tried other meds? Does it help with the OCD?

 

Melanie

[MomWithOCDSon]

So It took how ling 1 week to see anything?I know its not a magic bullet but I just want to take the edge off ..Have you tried other meds? Does it help with the OCD?

 

Melanie

Yeah, I would say one week would be a good time frame to start trying to measure Intuniv's impact, if any. It may be minor, but maybe you can get a concensus from your DS, a trusted teacher or two, and your own observations.

 

We have tried LOTS of other meds, but this is the only one specifically designated for ADHD or ADD-type behaviors that we've tried. Does it help with the OCD? I think so, to an extent. It doesn't set aside some of the more intense behaviors (for us, that's contamination), but it does improve his focus on what he's SUPPOSED to be focusing on, so that curbs the OCD tendency to get distracted and obsessed by other things in his environment at a given time.

 

Feel free to PM me if you want to talk about any specific medications; ufortunately, I think we've been through the gamut, frequently to no avail. But there have been some that helped DS through some of the rougher moments.

[melanie]

Just asking if anyone has tried this one?

Reallygood day Teacher says much more focused and calm today.He doesnt know hes taking the med .But dan has good and bad days so well see.Day 3

 

Oh and he came home took out his math work and just did it .Didnt fight about it and even got 1 wrong and was ok (usually gets mad when he gets one wrong)

[trggirl]

Melanie, that is awesome news!!!!

[MomWithOCDSon]

Just asking if anyone has tried this one?

Reallygood day Teacher says much more focused and calm today.He doesnt know hes taking the med .But dan has good and bad days so well see.Day 3

 

Oh and he came home took out his math work and just did it .Didnt fight about it and even got 1 wrong and was ok (usually gets mad when he gets one wrong)

Maybe you're on to something, here! Keep the faith, and hold tight!

[melanie]

Just asking if anyone has tried this one?

Reallygood day Teacher says much more focused and calm today.He doesnt know hes taking the med .But dan has good and bad days so well see.Day 3

 

Oh and he came home took out his math work and just did it .Didnt fight about it and even got 1 wrong and was ok (usually gets mad when he gets one wrong)

Maybe you're on to something, here! Keep the faith, and hold tight!

[melanie]

Just want to comment on the med

 

Hes doing pretty good 1mg at night ,seems to be calmer he says he feels pretty good ,not tired and eating fine (hes 16 so he eats alot) .Still all and all hes doing good.We have our next (6th) IVIG friday the 14th and were switching to the octigam the infussion is longer but were going to give it a try.

 

Melanie