Talecris - Funding Pandas

[Pandas_chicago]

Hello everyone! I just wanted to share some news - as always I have been working behind the scenes on some projects and I wanted to let you know that I did have a long conversation with one of the Doctors and Board members of Talecris - regarding current Pandas research funding, how they plan on using the funds, what is the future...etc... It is exciting that one of the heavy players in the IVIG manufacturing is on board with Pandas - I asked the Doctor if they could help with grants for insurance mediation and or possible financial assistance when families do not have insurance. The response was that it will be dependent on a couple of factors, 1) - the outcome of the clincial study 2) the medical community ...meaning if it becomes an approved protocol for treatment - which may be coming down the pipeline in the next two years. ....but he sounded optimistic.....It just takes one major company to recongnize the disease and others will follow!

[Fixit]

This is good to hear....thank you for sharing the info you have!!!

 

Hello everyone! I just wanted to share some news - as always I have been working behind the scenes on some projects and I wanted to let you know that I did have a long conversation with one of the Doctors and Board members of Talecris - regarding current Pandas research funding, how they plan on using the funds, what is the future...etc... It is exciting that one of the heavy players in the IVIG manufacturing is on board with Pandas - I asked the Doctor if they could help with grants for insurance mediation and or possible financial assistance when families do not have insurance. The response was that it will be dependent on a couple of factors, 1) - the outcome of the clincial study 2) the medical community ...meaning if it becomes an approved protocol for treatment - which may be coming down the pipeline in the next two years. ....but he sounded optimistic.....It just takes one major company to recongnize the disease and others will follow!

[bgbarnes]

This is good to hear....thank you for sharing the info you have!!!

 

Hello everyone! I just wanted to share some news - as always I have been working behind the scenes on some projects and I wanted to let you know that I did have a long conversation with one of the Doctors and Board members of Talecris - regarding current Pandas research funding, how they plan on using the funds, what is the future...etc... It is exciting that one of the heavy players in the IVIG manufacturing is on board with Pandas - I asked the Doctor if they could help with grants for insurance mediation and or possible financial assistance when families do not have insurance. The response was that it will be dependent on a couple of factors, 1) - the outcome of the clincial study 2) the medical community ...meaning if it becomes an approved protocol for treatment - which may be coming down the pipeline in the next two years. ....but he sounded optimistic.....It just takes one major company to recongnize the disease and others will follow!

great news!!!!

keep us posted!!

Brandy

[thereishope]

Thank you for letting us know. How exciting!

[forjpj]

Awesome!!

[sf_mom]

Thank you, I commend ALL your efforts in speaking with Talecris. Fantastic News!

 

-Wendy

 

Hello everyone! I just wanted to share some news - as always I have been working behind the scenes on some projects and I wanted to let you know that I did have a long conversation with one of the Doctors and Board members of Talecris - regarding current Pandas research funding, how they plan on using the funds, what is the future...etc... It is exciting that one of the heavy players in the IVIG manufacturing is on board with Pandas - I asked the Doctor if they could help with grants for insurance mediation and or possible financial assistance when families do not have insurance. The response was that it will be dependent on a couple of factors, 1) - the outcome of the clincial study 2) the medical community ...meaning if it becomes an approved protocol for treatment - which may be coming down the pipeline in the next two years. ....but he sounded optimistic.....It just takes one major company to recongnize the disease and others will follow!