Blood Work

[melanie]

Good morning

 

Im calling the immunologist today and Im demanding some tests .The problem is I dont know what to ask for LOL. Dannys having hnis 5th IV tomorrow 1 g still (I know I know) I want the mycroplasm tested again and I want the titers checked and the kam 11?

 

Can someone please please tell me the tests for synd.correa also?

 

 

Thanks a million gizillion

 

Melanie

[justinekno]

I'm sure the veterans here will give you the information you're looking for as we are new to the PANDAS world but I was wondering what the test for kam 11 is. I thought that was tested within the Cunningham test?

 

Good morning

 

Im calling the immunologist today and Im demanding some tests .The problem is I dont know what to ask for LOL. Dannys having hnis 5th IV tomorrow 1 g still (I know I know) I want the mycroplasm tested again and I want the titers checked and the kam 11?

 

Can someone please please tell me the tests for synd.correa also?

 

 

Thanks a million gizillion

 

Melanie

[melanie]

I'm sure the veterans here will give you the information you're looking for as we are new to the PANDAS world but I was wondering what the test for kam 11 is. I thought that was tested within the Cunningham test?

 

Good morning

 

Im calling the immunologist today and Im demanding some tests .The problem is I dont know what to ask for LOL. Dannys having hnis 5th IV tomorrow 1 g still (I know I know) I want the mycroplasm tested again and I want the titers checked and the kam 11?

 

Can someone please please tell me the tests for synd.correa also?

 

 

Thanks a million gizillion

 

Melanie

[melanie]

I just want to ask her for specific tests maybe she will bump up the ammount of IVIG

[Stephanie2]

I just want to ask her for specific tests maybe she will bump up the ammount of IVIG

 

Maybe lyme and mycoplasma pneumonia

[peglem]

I just want to ask her for specific tests maybe she will bump up the ammount of IVIG

Melanie, I posted some studies regarding the efficacy of higher dose IVIG in autoimmune disorders at the end of this thread. Maybe something you can use to argue for the higher dose?

[Suzan]

This probably won't help with the increase in IVIG, but, we had HHV6 and HSV1 and HSV2 tested. Our neurologist said that if the body does not process these correctly, they can cause neurological issues and might be cleared by antivirals. I was thinking of this since I just posted to someone else the same info.

 

Susan