Memory and Hearing Loss

[pandaskid]

Within the last month I have notice that my hearing and memory are starting to worsen. I saw a hearing clinic a few months ago and all was normal, but I still find myself watching tv or listening to my mom and not hearing what they are saying. Sometimes I hear nothing and other times I know theyre talking but I cannot retain or comprehend anything that had been said. It is incredibly frustrating. I also am having memory loss, forgetting what I've done, what I've been told to do and even forgetting to tell my doctor that Ive been forgetting things. This too is incredibly frustrating. Also, when reading I am having dyslexia type symptoms, reading a word wrong or not noticing words and this makes reading extremely frustrating too. I was wondering if anyone else has these issues and if so what have you done to fix or cope with the issue?

 

All I am able to do these days is watch tv and read and I would really like to be able to find enjoyment out of these things since everything else I do makes me sicker and now these issues are making me feel incredibly frustrated and ramping my OCD even higher. Thanks and let me know if you have any advice or experience with these symptoms.

 

PANDASkid

[fuelforall]

Within the last month I have notice that my hearing and memory are starting to worsen. I saw a hearing clinic a few months ago and all was normal, but I still find myself watching tv or listening to my mom and not hearing what they are saying. Sometimes I hear nothing and other times I know theyre talking but I cannot retain or comprehend anything that had been said. It is incredibly frustrating. I also am having memory loss, forgetting what I've done, what I've been told to do and even forgetting to tell my doctor that Ive been forgetting things. This too is incredibly frustrating. Also, when reading I am having dyslexia type symptoms, reading a word wrong or not noticing words and this makes reading extremely frustrating too. I was wondering if anyone else has these issues and if so what have you done to fix or cope with the issue?

 

All I am able to do these days is watch tv and read and I would really like to be able to find enjoyment out of these things since everything else I do makes me sicker and now these issues are making me feel incredibly frustrated and ramping my OCD even higher. Thanks and let me know if you have any advice or experience with these symptoms.

 

 

Hello,

Well, Pandaskid, I guess I would just say you have PANDAS and you need treatment. Hope you can get the abx you need and perhaps some kind of higher level treatment. Because you sound like a dead ringer for my ds9 who has all those issues and more. I hope IVIG will be helpful to him as well. Best of luck.

Michael

[pandaskid]

Ive been on 4 different types of antibiotics, done a 5 day burst of steroids and a month long course of steroids w/ taper and we are now pursuing an IVIG but are not having much luck. Is there anything that calms your son down?

[fuelforall]

Ive been on 4 different types of antibiotics, done a 5 day burst of steroids and a month long course of steroids w/ taper and we are now pursuing an IVIG but are not having much luck. Is there anything that calms your son down?

 

Not much. Did you try clindamycin? It's probably the best antibiotic we've used. I think it's pulled him out a more extreme state.

That and perhaps getting his tonsils out.

 

Good luck on the IVIG.

[pandaskid]

Thanks, I'll suggest that one to my doctor next week. None have worked so far so I'm hoping she'll be willing to try that one.

 

Thanks again,

PANDASkid

[fuelforall]

Thanks, I'll suggest that one to my doctor next week. None have worked so far so I'm hoping she'll be willing to try that one.

 

Thanks again,

PANDASkid

 

It's wicked strong (kicks major league strep tail) so make sure you take your probiotics as well. Dr T gave it to my son. See if you can get at least a month's worth and if you're as tough a nut as my son, it may take three weeks or so to see any difference.

 

M