efgh?

[Chemar]

Hi efgh

 

I have missed you on the boards and just wanted to check in to see how you and your son are doing.

 

Hope things are ok

maybe you are on summer vacation?

 

God Bless

Cheri

[Claire]

Chemar,

 

efgh just checked in yesterday or so on the 'to Andy' thread (I think that was the thread)...

 

Claire

[Guest Guest_efgh]

Hi Chemar

 

Thanks a lot for asking. I just checked in a while ago and kept you all posted on my son in the thread "to andy" as Claire mentioned. Hope you had read that post of mine.

 

My son is doing well these days - he still has tics but manageable as of now. He is still on no tv.

 

How are things with you. how is your son doing ? Did his recent waxing (related to his tooth) settle down?

 

Other than that , I have been a bit busy lately and my computer was also down for a while. We would be on a summer vacation the whole of this month. Would try to login whenever time permits.

 

Claire,

 

Can you please give me the model number of the LCD samsung TV that you use for your son?

 

Chemar,

 

Does your son also watch TV on a LCD screen? If so, what make and model?

[Chemar]

hi efgh

glad all is well with you.

 

I havent been able to keep up with as many threads here lately as I have been very busy with my business, where I am set to launch another new website, and the three forums that I now moderate.

 

But I try to check in here every day just to stay in touch and also in case there is any input I can add on anything.

 

My son just got back from an amazing mission trip and again, just like last year, his tics were almost totally gone while away and are still barely noticeable.

It really seems very beneficial for him to become so involved in helping others, plus away from all the electronics here at home

 

anyway.....I am happy to hear all is still going smoothly for you and your son.

God Bless

Cheri

[Claire]

efgh,

 

here is the LCD monitor with a TV tuner, that I bought (Samsung Syncmaster 15" for $449)

 

 

http://www.bestbuy.com/site/olspage.jsp?id...41&type=product

 

Chemar,

 

Good luck with your new site!

 

Claire

[Andy]

Hi everybody , thought I give an update on my son. His tics are still there but under control now. This is three weeks with no pool, two weeks with no T.V and with added supplements that were based upon his last blood test. I was wondering Chemar if you could inform me of the location of the mission trip. I wish to inquire for my son's tics seem to be more frequent during the summer months and I was wondering about enviroment issues of different areas, e.g seasonal plants, mold spore increase in air, etc. So far he has shown the most tics in New York City and Southwest Florida during the summer months. I am also planning on getting my son tested for metals from what I read here and researched, there seems to be a link.

[Claire]

Andy, Chemar

 

Hi Andy,

 

That is great news that you are seeing improvement! Our DAN doctor said it would take about 2 months to start seeing improvement from the supplements. What does under control mean? What was the frequency before and now, or is it that the tics themselves are less severe? It is good to note this so that you can track the progress for all the things that you are doing. Did you notice continuing improvement or did it end after the first week of no TV? (Again, I do believe and hope that the supplements will continue to help, but usually it is more slow to see results).

 

Do you plan to continue no screens or add them back and see if the tics worsen again over a couple of weeks? (Or try an LCD monitor).

 

Have you started eliminating artificial ingredients, or were you already doing that? Sorry if I forgot. I do remember all the food allergies your child has, even worse than mine.

 

Chemar,

I thought the same thing as Andy, in terms of what about the mission environment might be different? Though of course you know that I will be the first to suspect that the lack of screens for a couple of weeks was a major factor for your son, since you and he both notice it being a trigger for him . Having said that, I understand that your son is older and sets his own priorities on the trade-offs!

(With Chemar launching a new website, not sure that she is reading here right now though).

 

Claire

[Chemar]

Hi

taking Sunday off the website stuff

 

It is really hard to say about the mission environment, other than that he isnt on the computer etc. BUT this time round they were staying in a building with fluorescent lights, which is usually a massive trigger for him.

This year he was in Philadephia. They slept on the floor of the air conditioned, fluorescent lit church in the suburbs and bussed in to a big downtown park every day where they did a summer program for 100s of inner city kids, and then also did chores for the elderly and infirm folks in the very rundown neighborhood.

Evenings they bussed back to the suburban church building, where the ladies had dinner prepared for them. He ate good home cooked meals, in the evenings, but clearly not without the stuff we always avoid here and he drank sodas etc. He took his supps daily. Breakfast was cereal and milk and fruit and lunch was junk food downtown

 

last year he was in a garbage dump slum of Managua, in Nicaragua where they built an orphanage and med clinic for the people there. They stayed in very primitive and unsanitary conditions, sleeping on the floor of a converted rundown house that is being used as the church there, outdoor showers and no electricity except for an evening generator to cook food. They ministered to the "dump people" and the conditions were heartbreakingly horrible!

They ate rice and beans daily!!!! and the temperatures and humidity apparantly made our Florida summers seem cool

 

 

So, to try to equate the 2 trips is nigh impossible, other than that they were a happy team, busy each day serving other people.

 

Yes, he was away from electronics on both trips, but he has been to visit friends before without electronics and not seen quite the same effect. Although I know certain types of light flicker do affect his tics, certainly we have noticed fluorescent light to be a far bigger tic trigger than "screens" or other flicker phenomena, and yet, inspite of the fluorescence at their accomodations on this last trip....the tics were almost negligible and are still way down, even after a week back home with daily computer/video game & TV and loud music etc etc saturation!!!

he doesnt actually watch all that much TV (CRT screen) and his computer monitor is LCD. He plays some video games on the TV, but actually prefers computer games to Nintendo, playstation etc.

 

As I have mentioned before, the "tic effect" of screens for him is minor compared with the anxiety and frustration and therefore increased tics he showed when we did try to eliminate screens by decree rather than by his own choice!

He really does limit himself well, and simply doesnt play the kind of "explosive" or multi motion games that he knows set him off.

 

Oh well, he says that he feels the reduced ticcing is because on the mission trips his focus is on God and other people, not himself, and that they have very full days where they work hard but really enjoy what they do......

 

whatever it is........I am sure thankful to see it!!!

[Guest Guest_efgh]

Chemar

 

Congrats and goodluck on your new website.

With so much of knowledge and expertise and with your caring nature, I would not be surprised to see a nice website from you on TS too!

 

I am really glad for your son. He no doubt is a real service oriented child. He will be extremely successful in life due to this remarkable attitude. Reg. his tics coming down in the trip, I noticed the very same thing in my son last september , a drastic reduction ane then gradually it increased... Sometimes I tend to think if his allergy is "ME"!!!!!

 

Do you have a LCD TV in your place or does your son watch TV on a normal CRT screen?

 

Claire

 

Thanks for spreading your tip on "limiting screens". many parents have been benefitted, no doubt.

 

KEep in touch and take care all of you. We are right now on a summer vacation and i may be only posting a bit less.

[Chemar]

thanks for the kind words efgh

 

Yes, my son watches TV on a 32in. CRT screen and doesnt seem to tic much from it as long as it isnt in a dark room. We use the daylight lamps at night if he wants to watch TV. he also plays videogames on that TV.

 

He spends far more time on his computer which has a large LCD monitor. he actually prefers computer games to videogames.

He doesnt tic much while playing on the computer.

[Andy]

Claire, Chemar, Jeniffer and anybody else who is interested , First, I think That the positive energy of G-d and doing the lords work could only help one's body and soul. I am very impressed with what you do Chemar with your life and the tone you seem to set for your family. As for my home front, my oldest son is humming and sighing away every now and then but it is a range of happy notes so it is not a social issue at his age. He is still blanking out now and then with the stare to nowwhere and occassional head to side but he now has regained control of his arms and hands as well as not having his head turned into his shoulder for most of the day. Last few days some have been better then others but at least he can enjoy himself now. We had him in a month long half day camp and now a three hour art camp course. We want him to always feel he could be out and about no matter what and try to boost his self esteem whenever we could. Last summer was like a ###### and part of this summer was turning that way. However, we hoping we are turning the corner again. He went thru most of the pre-school year with little to no tics inregards to frequency, duration and severity. However, the little facial tics that were exibited were not really counted for it seemed so small compared to.... My son has been on a special diet and supplements for over a year now. We just added more supplements and his diet is always being modified. I am very much interested with getting him tested with another doctor for metals to see if a detoxicing needs to be done as well as get his stool tested for good bacteria and yeast levels. After that, we will share the information with his primary doctor if there is a lack of success with any proactive measures and again look into the anti-biotic treatment. I have a feeling that my son's issue can be resolved but it may take years to find everything that is a trigger as well as to clean up the cause of the problem that allows triggers. P.S. To anyone that is reading, I just recently looked at the sun tan lotions that were about the garage and it amazed me what was in some of them. I am going to try to obtain a more natural sun tan lotion with out all those chemicals and metals. If anyone has any suggestions, I would be glad to look into them. As an after thought, when I was living in New York and was making decent money, my sons were fed only organic, free range type of food with Tom's of Maine being in the bathroom. Now I suspect my son's problem may have to do with a bad vaccination shot and I thought we were so careful with that with all the concerns we discussed with the doctors.

[Claire]

Andy,

 

Chemar said her son reacted to suntan lotion, so she uses hats etc instead. We buy ours at Whole Foods--after I starting reading Latitudes, I didn't want him absorbing chemicals.

 

I am sorry for all your son is going through, and your other post made me sad, teary really--he sounds like a wonderful child who has a high awareness and a lot to think about at such an early age. It reminds me of how I told my son I wish I could just take on his health issues. When I tested positive for so many of the same things months later, he said "Mom when you wished to take them on, you forgot to add that mine should go away".

 

But my son doesn't have the discomfort anymore, and that is the hardest to watch. I was so teased in middle school age for problem skin and I was just thinking how it is so critical for us to create a safe home environment for our children were they feel total acceptance.

 

Honestly Andy, you are so dedicated that I am convinced that you will continue to find those things to help your son. My prayer for you is that you continue with your search and are not limited by the knowledge of any particular doctor. You do have the gift of time with your son--you do have time to understand this.

 

I too suspect the vaccines were a major event for my son. I also think our family has immune issues that made him susceptible since my dad has diabetes and my sister has hypothyroid.

 

Please do keep us posted, we really do want to hear of your journey. Plus keep in mind that what you learn and share will help others.

 

Claire

 

ps Please do read "Children with Starving Brains" when you have the time. It explains most of the current thinking of what the possible paths to investigate are, and which are most common and best to investigate first (actually, what you have discussed is her first recommended path). Jennifer mentioned it last fall, and it took me until July to finally read it.

[Andy]

Thank you Claire and I am sorry if I made you sad. I suspect that sometimes I use this forum as an outlet since I am publicly always the positive one at home and with the family. My wife is a strong women but she is a mother with a mothers pain and worry as well as a mother who is carrying our third child inside. I will look to order "Children with Starving Brains" and the "Makers Diet" this weekend from Amazon if my library doesn't have it. I hope that everyone who is looking for the answer will find a solution for themselves or for thier children. As for doctors, I am thinking about making the trip to Boco Raton to visit Dr. Robbins and stop off at Whole foods in Coral Springs. I hate to go to a second doctor for alternative treatments for my first is suppose to be one of the best and since it is local, it seems more natural for my son to go to the doctor. However, I can't understand why he takes so long in between with his testing and his reluctance to test for metals or bacteria/yeast levels and this is after our consultations on this topic. Maybe it's the age of my child, maybe I am missing something or maybe he may not be the one for my kid?

[Guest Guest_efgh]

ALL

 

Back from vacation today. My son is doing fine, Very minimal tics.. hopefully the trend should once he starts school, normal routine etc.

My neck problem is a bit better now though I have to BE CAREFUL. I was diagnosed "disc prolapse" with some compression near the neck area (c4 c5 discs). any more information, tips, clues to keep it under control. I am advised a cervical collar, physiotherapy, pain killers etc. any natural methods???

Dont know why it came - looks like the time I spent on the computer could have been the reason!

would try to be in touch with you all from now..

how are things with all of you - sorry could not read all the earlier posts..

 

efgh

[Guest Guest_efgh]

further to my prevous post, any good links on DISC PROLAPSE ?? sorry, i am going off topic.