Wonderful Story of Successful Athlete with TS/OCD

[Chemar]

This article is really worth reading

 

 

http://www.telegraph.co.uk/health/main.jht...13/htimmy13.xml

 

[Guest Guest_efgh]

Chemar

 

great article. thanks. But it says that it crescendos in mid to late teens. I always thought otherwise.. what do you all think?

 

thanks.

[Chemar]

Hi efgh

 

I have heard many people say that their TS was at it's worst in the teen years.

Average age of onset is usually around 10.

 

Then, when they reach the end of the 'hormonal years" it seems to stabilise again.

 

Of course, their are wide individual variations....with onset being much younger in some, and peaking often occurring in the pre- teen period.

 

Still, the majority of folks I have had contact with have had the pre-teen onset followed by the teen crescendo.

[Guest Guest_efgh]

A useful link for new comers

 

http://www.bbc.co.uk/health/conditions/tourette.shtml

[Guest Scott]

I have been this forum lately. I have tourettes..I am 31 now...I had it when I was younger. They had me on haldol and I did biofeedback...It seemed to go away(well I could control it) for the last 15 yrs or so..

 

We just had our first baby and I took 2 months off after my wife went back to work..When I got back to work it seemed harder to control and I started getting very obsessive and it was harder to control my tics.

 

ANYWAYS....I used to play racquetball competitively until I hurt my elbow a few years ago..

 

I won over 100 tournements playing when I was a kid with tourettes and won a national title also...I didnt let it control my life.

 

I am hoping more people put there sport success stories on here.

 

Scott

[Claire]

Scott,

 

Did your tics get better when you were home for 2 months, or stay the same and just get worse when you went back to work.

 

If they got better at home and worse again at work, then you might consider something in your work environment (in addition to general work stress).

 

e.g. their particular carpeting, the flourescent lighting, or if you work on a computer all day (especially a CRT screen), that can be a trigger.

 

Claire

[Guest Scott]

Hi Claire,

 

I was fine when I was home...I think a lot of it is from work. Not the nicest environment to work in

 

I was reading around here on Lecithin and Ginko etc....

 

Do you know if these work or if there are others that seem to work well?

 

Scott

[Claire]

Hi Scott,

 

Bonnie Grimwald has a supplement program which some people like. You can look at her list and note what she recommends.

 

http://www.bonniegr.com/ts-PLUS%20CONTROL.htm

 

Chemar found this wonderful site where you can find research on the various herbs.

 

http://healthinfo.healthgate.com/GetConten...&chunkiid=33802

 

EFA's are big among many of us. (Omega 3's and flax or fish oil).

 

My own procedure: We had a vitamin deficiency test run by Spectracell. 713-621-3101. It cost $265--and though our doctor ordered it, no doctor signature is required. I did it for my son and then for myself. We both had a ton of deficiencies and are supplementing for them now. My son however has only one tic trigger: CRT Screens, either TV or computer. But

 

Finally, you didn't ask, but:

 

- Food allergies can be big tic triggers and both Immunolabs and ELISA run a blood IGG test for 150 food allergies for $300.(different from the IGE test many GPs give, which don't pick up delayed reactions).

 

- If you have good insurance, you might consider a DAN doctor from the list on this site, who will run diagnostic tests such as these to find immune conditions that when treated, can greatly improve tics. Most of the regulars on this site have gone through or are going through some vitamin supplementation or food elimination and most have found it makes a difference.

 

http://www.latitudes.org/forums/index.php?...p?showtopic=565

 

Claire

[Guest Scott]

Hi Claire,

 

Sorry it took so long to write back. I wanted to thank you for all the info you gave me. I have very good health insurence..I am so scared of dr's that it will be impossible for my wife to get me to see one...

 

What exactly do the EFA's do and how much do you take? I work out a lot and used to take flax when I was younger....

 

Thanks

Scott

[Claire]

Hi Scott,

 

I read that flaxseed oil is often not processed well by males (85%, so we give our son fish oil (cod liver oil actually), by Nordic Naturals. Plus we give him Borage oil (Evening Primrose is a alternate), since I read that GLA's are needed to help with the Omega 3's.

 

Claire

 

ps I am not sure if your fear of doctors is just a 'part of you' or if you think they will make a diagnosis to label you or push you to take drugs? Or give you bad advice. I was very afraid of doctor's pushing drugs. Our DAN MD only diagnosed 'metabolic disorder' and is sooo low pressure, he is wonderful--and drugs were not even a part of the discussion. No physical exams, we just filled out paperwork in advance and talked for a few minutes, then he loaded us up with kits for blood and urine tests. After the first visit, my son didn't have to go on the visits--the doctor just reviewed the test results with me. I get copies of all the tests and do my own research on the results. He even lets me call in a lot with my questions--you might be able to arrange phone consults after the first visit. These doctors recommend supplements which you buy over the counter and food elimination if you have allergies. The most invasive part are the blood tests. But I think some here use naturopaths that don't use blood tests either.

 

Not trying to push you to see a doctor, but just explaining the process--my mother and husband both avoid doctors like the plague!