Since 4 yars of age

[Andy]

Hi, my name is Andy and my son was diagnoised with TS at 4 years of age. My wife and I had noticed tic behavior when he was 2 years of age. The first tics were blinking eyes and bushing his hand across his eye even if no hair was present. Today he is 5 years of age and he exhibits blinking, throat noises, hand waving, stifffing of arms, and sometimes staring out into space. Nightmares are common as well. There is no family history of TS and I wonder if this may have been caused by vaccination shots or perhaps a linging infection. We had him tested and he is allergic to gluten, rice, corn, soy, sugar, milk and a few other things. Does anyone out there have a son or daughter in the same boat and what do you do?

[Phyl]

Welcome Andy,

Since your son has known allergies, have you checked out the book, "Is this your Child? Discovering and Treating Unrecognized Allergies in Children and Adults" by Doris Rapp, MD? http://www.amazon.com/exec/obidos/tg/detai...=glance&s=books As I recall she relates the story in there of a young boy who had allergies, which when treated, helped his tics to disappear. Dr. Rapp has a website: http://www.drrapp.com/

[Guest Guest_efgh]

Phyl

 

That is interesting. As per that book, how was the young boy treated for allergies???

 

thanks.

[Phyl]

Dr. Rapp used allergy neutralization treatment (provocation/neutralization). She described two different boys with TS, allergies and hyperactivity. Edward is described on pages 345 - 350; Julius is on pages 404 - 405. In both cases, it seems that the allergy treatment helped hugely, but had to be redone as the kids became exposed to new triggers as they grew.

 

Maybe someone else knows more just what this allergy neutralization treatment entails?

[Claire]

Phil,

 

I wanted to do this for my son. They give you a specified amount of the offending substance to 'provoke' a reaction, then give you a very small amount which somehow serves to 'neutralize' the reaction. I think the concept is similar to getting allergy shots with antigens. This was why I sought a DAN/EM doctor as they study this.

 

However, my son's doctor says he no longer does this because of the time involved, and sticks with the elimination and rotation of foods to achieve the same goal. The P/N method is supposedly much faster, per Dr. Rapp. She also discussed either the the NMT or NAET method in her book. I get them confused.

 

What I don't know for sure is if the doses are swallowed or shot--somehow, I thought 'swallowed' though.

 

My son had a terrible stomache last night. I was racking my brain for milk exposure--since that is where the stomachache occurred before. I went back and checked a label of something new he had and sure enough, it had milk in it. He never used to get stomach aches when he had milk daily, but I was told this is normal. Hard to believe he supposed to be getting closer to being able to have milk.

 

Claire

[Guest Guest_Andy]

My son's allegies were diagnoised from blood tests. I am assuming that this is an exact science. The rotation diet doesn't seem to work for my son at least not yet. He tends to wax and wane with his tics and the tics tend to change as well with only eye blinking being the constant. We have him on a special diet and we are trying the B vitamin group. Of course I wish this problem would go away forever but right now I just want him to be at a point where he will be accepted in public. At one point this was not the case.

[Andy]

By the way Phyl, thank you for responding.

[Guest Nancy]

Claire,

 

Thought I'd pop in on the allergy discussion. I read Dr. Rapp's book, which is why we tried the P/N testing and treatment with the environmental doctor for my son a few years ago. The testing takes awhile, as they inject a tiny amount of the allergen under the skin, which makes a little "bubble" when it reacts. They keep injecting weaker amounts until they reach the level they don't react to, which is supposed to be the treatment dose. They have to do this for every allergen (there were something like 17 different molds alone!). Once they figure out the proper treatment dose for all the allergens you then have to take regular allergy shots, probably for years. Or, you can take the treatment as drops under the tongue, but the doctor said you usually get better results with the shots. They actually trained me to give my son the shots at home, as we were about an hour away from the doctor and couldn't easily get there every 4 days.

 

As I mentioned before, I know many people get excellent results from this method, but my son's tics actually got worse every time I gave him the shots. Maybe it would have settled down if we had stuck with it longer? I don't know, but we didn't keep it up with those results.

 

I'm sure Dr. Rapp didn't talk about NMT in her book because it hadn't even been "invented" at that time. I don't recall her talking about NAET, but it's possible. I did hear her speak a few years ago and she demonstrated a technique that I later realized is very similar to NMT. She was just learning about it and said she had seen amazing and much quicker results for allergy treatment with it than the P/N methods she had been using. I often wonder if she uses any type of energy medicine now herself.

 

As far as NAET, I also know many people have good results with it, but NMT is supposed to be much quicker, with better results. My naprapath only uses NMT now, I believe. If you were to try NMT I would recommend finding a doctor who has taken the advanced training.

 

Take care,

 

Nancy

[Claire]

Nancy, Phil, Andy

 

Andy,

I REALLY feel for you with those allergies for your child!! My son has a long list including wheat (most wheat substitutes too), corn, milk, eggs. So he lives so much on rice and soy. Other than potatoes, I don't know WHAT I would do if he couldn't have rice (comfort food/filler) and soy (protein).

 

Andy, I am a skeptical of such an early TS diagnosis with no TS in the family. I hope that you get some metal (mercury) toxicity testing done, and yeast testing. The food elimination is a GREAT first step, but only part of the protocol for diagnosis of immune issues that can cause tics and other issues. Most of us here have seen remarkable success with supplements, and many have uncovered such problems. Your child is sooo young. The threads here show many available tests to inform your doctor of, and the doctor list at the top of the page shows doctors that will order them, if yours won't.

 

Nancy and Phil

Yes Nancy I remember your comments on P/N increasing your son's tics Nancy--I forgot to mention that to Phil. Phil, I just called our DAN doctor about it and his office assistant (?) said it was more to stop a reaction, and elimination/rotation was better. I have to reread Dr. Rapp on that one.

 

As for the NAET or NMT mention by Doris Rapp, I just checked the book again. It was NAET and was discussed in her more recent book: "Our Toxic World--A Wake up call". She effectively says she saw some believable results, and just because you don't understand it, doesn't mean it can't work.

 

I know that the two are similar. From what she described, the NAET is something my son's neurotherapist tried after TV exposure: Hand on forehead and base of neck, press hard, breath in (or out) and say something like TV something. It did seem to stop his fidgetiness after a brief TV exposure (non-LCD). But they said we had to call them every time at $300/hr to do it, so we stopped. I saw no reason for him not to just do the technique on his own, but the technician said that it mattered if he breathed in or out first, and she needed to diagnose his voice over the phone to know which (Even if this were true, he could just do it both ways!)

 

If that sounds weird and manipulative, you can understand my son's reluctance to continue. He absolutely refused after two evening voice sessions--and I offered to pay him. Unfortunately, it broke his confidence in such methods. But he might be game. I remember now, I checked your NMT list, and was having a hard time finding someone who is advanced. Can you repost that list?

 

Jean, sorry, are you doing NMT or NAET??

 

I think my son might be game to try this for the screen viewing. I won't do it for foods I think, it is too hard to say, whoops it didn't work, you can't eat it after all. With the TV I can just switch to LCD again.

 

Finally, I asked the DAN/EM doctor about my psyllium seed vs psyllium husk allergy. His assistant said he said my daily intake kept me from reacting (masked it), in some way protecting me. I asked if this was why my son got stomach aches from milk now when he didn't used to and she said yes.

 

Now I am COMPLETELY confused. Why stop a food if stopping it makes your later reaction worse? Well, I need to wait for a real doctor appointment again--phone relays just aren't effective for complex discussions. Does anyone else understand this?

 

Claire

[Guest Nancy]

Claire,

 

Hmm, actually NAET sounds rather different from NMT. The whole phone consult and $300 an hour sounds a bit excessive! The little I've learned about NAET is that you have to treat each allergen separately, and it can take a long time to clear each one. NMT can address the group of allergens together, with quicker and (supposedly) permanent results. It is supposed to correct the faults in your autonomic control system that allow the unwanted response to occur. It does involve breathing, but the actual treatment methods sound different. Muscle testing is a big part of NMT. My son has never felt uncomfortable with it, but he's younger than your son. I know it's certainly hard to get him to try new things he's NOT comfortable with. We paid $60 a session, which often lasted an hour. You can check the website Neuromodulationtechnique.com for the list of practitioners. It says if they've taken the comprehensive or advance course. Again, I'm sure the commitment and experience of the doctor probably makes a difference.

 

Energy medicine was certainly a new concept to me, and I can't say that I really understand it, but it really seems to have helped my son, so I'm trying to be open to new things.

 

Good luck. Soo many things to consider, huh?

 

Nancy

[Claire]

Nancy,

 

Well the voice part was the neurotherapists own 'thing'. I think they believed it and maybe or maybe not it is true. But they made him do it again and again until he said he felt fine. He felt 'punished' so finally he just said he was fine and they would say--see, it works.

 

Thanks for the pricing info. That is affordable enough to not be an issue. I am going to see how his retesting goes (e.g. mercury, vitamin deficiencies and yeast) in June and go from there. Summer is the best time to do something like that, since it doesn't disrupt his day so much.

 

Claire

[Guest Jean]

Claire,

 

My son is doing NAET. The cost is $75 each session (1/2 hr). I personally think that the cost is different based on the area.