How long for authorization to post here?

[ajcire]

I know someone who has recently discovered her ds likely has pandas and she registered but can't post yet. Just curious how long it takes as I don't remember.

[peglem]

I know someone who has recently discovered her ds likely has pandas and she registered but can't post yet. Just curious how long it takes as I don't remember.

I didn't even know there was a delay. Is she sure she is signed in when she tries to post?

[ajcire]

I didn't remember a delay either but figured I just forgot.

 

 

 

 

I know someone who has recently discovered her ds likely has pandas and she registered but can't post yet. Just curious how long it takes as I don't remember.

I didn't even know there was a delay. Is she sure she is signed in when she tries to post?

[thereishope]

I've had glitches in my computer before when I couldn't post for a day. Hm. Make sure her cookies are enabled?

[Worried_Dad]

I could be remembering wrong, but I thought I had to register and then wait for my official approval to post. I think it took a few days - a week, max - but it's been a long time, and I'm really not sure.

 

Chemar could probably give you a much better idea of the "standard registration approval" time.

[Buster]

I could be remembering wrong, but I thought I had to register and then wait for my official approval to post. I think it took a few days - a week, max - but it's been a long time, and I'm really not sure.

 

Chemar could probably give you a much better idea of the "standard registration approval" time.

My memory was I had to confirm an email to my real email account ;-) Perhaps the person misregistered their email account.

 

Buster

[ajcire]

Thanks, I will pass this info on although I know she can read the boards she probably sees even though she can't post

 

What I am finding so fascinating is that they say this is a rare thing but yet I am coming across more and more people not just from on this board obviously whose children seem to have this. I just don't get how the medical community can continue to keep their head in the sand about this.

[peglem]

Thanks, I will pass this info on although I know she can read the boards she probably sees even though she can't post

 

What I am finding so fascinating is that they say this is a rare thing but yet I am coming across more and more people not just from on this board obviously whose children seem to have this. I just don't get how the medical community can continue to keep their head in the sand about this.

 

I told the immuno the other day, when he said this was a rare disease, that I thought maybe it was just rarely diagnosed because not many physicians are aware of it yet. He said that may be the case, since its a newly recognized disorder. But, my recent experience w/ medical people is that they are beginning to come around. They were much more willing to consider it now, than they were 2 years ago. We're just impatient because our kids need it NOW, but I think in a few years it will be much better.

[tantrums]

Thank you Erica! I found the "resend validation" button and it came right through. Not sure what happened! I'll do an intro post as I'm sure you all can understand, I'm reeling and full of questions! Also learning this groups format, so please bear with me.

[Buster]

Thank you Erica! I found the "resend validation" button and it came right through. Not sure what happened! I'll do an intro post as I'm sure you all can understand, I'm reeling and full of questions! Also learning this groups format, so please bear with me.

Hi Tantrums,

 

You are the perfect guinea pig for the Frequently Asked Questions... Please look at: http://www.latitudes.org/forums/index.php?showtopic=6128

 

and http://www.latitudes.org/forums/index.php?showtopic=6142

 

There's a lot we don't know (and amazingly some things we do know), so please help all of us with voicing your questions .... they are likely the ones others have.

 

Buster

[tantrums]

Thank you Erica! I found the "resend validation" button and it came right through. Not sure what happened! I'll do an intro post as I'm sure you all can understand, I'm reeling and full of questions! Also learning this groups format, so please bear with me.

Hi Tantrums,

 

You are the perfect guinea pig for the Frequently Asked Questions... Please look at: http://www.latitudes.org/forums/index.php?showtopic=6128

 

and http://www.latitudes.org/forums/index.php?showtopic=6142

 

There's a lot we don't know (and amazingly some things we do know), so please help all of us with voicing your questions .... they are likely the ones others have.

 

Buster

 

I've read those all - more than once LOL! - over the past couple of days already. My brain is swimming. SOOO much good, concise info there! I forwarded it to my mother as well since she is a mess over this. I feel it was very easy to help assist family members in understanding. That does make me remember one other primary question, but I'll post to my other thread. I dont' want to overwhelm this group with newbie anxiety and questions that have probably been answered a thousand times.

[peglem]

I dont' want to overwhelm this group with newbie anxiety and questions that have probably been answered a thousand times.

 

I think most of us here are willing to answer the same questions over and over, or at least find for you where it has been answered before. There is such a wealth of information here- it can be overwhelming to new members. We are here to support and help in any way we can.

[tantrums]

Thank you! I am so overwhelmed, yet somewhat relieved by what I have been reading here the past couple of days. Relieved I guess that even though I am seeing more and more that my son definitely DOES certainly have even more symptoms than I had thought, relieved that I am obviously not alone and able to get the advice and understanding of so many other parents. What on earth DID we do before the internet??