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Posted

I just want to say thank you all from bottom of my heart for giving help to my son – turning 13 yo in Jan boy in China.

Thank you Diana, EAmom, Cheri, Chrisw, Worried Dad, NacyD, mati's mom and all others. Thanks this forum. Thank you Dr. K for your email early this year to help my son!.

Long long history – 7 years already! We are still struggling with this, we have no way to dx for PANDAS and we have no doctors to guide us locally, but this forum, all of your post and emails have helped me a lot and will continue to help me for sure!

We are doing Sammy dose of antibiotic ( locally made similar to Augmentin) for about 4 weeks so far, some improvement showed up, there has been two weeks period that yelling, screaming and crying did not went out from our window to bother the neighbors!!!! Some other improvements as well! Well, he is still on ssris med and other psych meds which I have started tapering down the dose currently slowly. He still has some issues, biggest one is mouth opening and often he hits his face after mouth opening. He has some backslide this week slightly somehow. Hope the backslide stops and make a “U” turn to go forward to improve…………

I will post details when it gets clear-cut after I wean off all those drugs(SSRIs and psych med). Hope I will have the chance!

 

Hope all of our kids will be back to us from PANDAS, they will be as lovely as our Panda Bear! not PANDAS! Color picture maybe for Panda Bear is her dream forever, but our dreams are hopeful!

 

Just want to say to you all THANKS for GIVING!

 

Turkey is coming out from your oven soon later, Have a nice Thanksgiving.

 

Jack

Posted

Jack, I wish your family was here with my family at our Thanksgiving table. All the best to you and keep us posted. And I would like to add my "thanks" for all of you dear people on this forum, my internet soulmates. Wishing you all peace and strength as we all move forward.

 

Hugs,

Coco

Posted

Thanks Coco, I wish I could. Thank you Elizabeth!

 

EAMom, thank you so much. I spent you a lot of time, each of your replied email were so helpful and put my heart back in from my throat. Appreciated!

 

Thank you all, Happy Thanksgiving!

 

Jack

Posted

What a great thread--and an international reach--

 

I want to add: THANK YOU to all of you--the past year and a half has been :) BUT one of the standing supports to my heart has been this forum (night or day) of unknown faces, but all too familiar stories...

 

Thank you--As we put the pieces together--we have written a picture of this illness that does not exist anywhere else, a help to many, many of us along the way--

 

I am thankful for you all.

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