ajcire Posted November 23, 2009 Report Posted November 23, 2009 I just got my ds's results from bloodwork he had done last year. I never thought to request this but the dr. is now not taking insurance so I decided I should get his records. I saw this dr. one time regarding pandas last year. He ran a lot of bloodwork and said it was all normal. I was too clueless to even ask what he was testing for. So I just received it and there was one thing that came back positive out of range. Gliadin AB (IGA) Negative Gliadin AB (IGG) Positive Does anybody know what that means? I'm guessing it's nothing but figure that since I am staring at it and wondering I might as well try to figure it out.
peglem Posted November 23, 2009 Report Posted November 23, 2009 I think that's what they test for celiac's disease.
kim Posted November 23, 2009 Report Posted November 23, 2009 erica, You might try posting on the TS board or reading thru some of Caryn's threads there. I think she still keeps an eye on that forum. She has a celiac positive son. Here is a link to one of her threads. http://www.latitudes.org/forums/index.php?...'s&st=0
ajcire Posted November 24, 2009 Author Report Posted November 24, 2009 Thanks, I will look around there. I am telling myself it must be something the dr. felt was fine but then I also know they are human and miss things. quote name='kim' date='Nov 23 2009, 03:55 PM' post='45955'] erica, You might try posting on the TS board or reading thru some of Caryn's threads there. I think she still keeps an eye on that forum. She has a celiac positive son. Here is a link to one of her threads. http://www.latitudes.org/forums/index.php?...'s&st=0
Suzan Posted November 24, 2009 Report Posted November 24, 2009 http://www.celiac.com/gluten-free/index.ph...nfreeforum.com/ This is a great forum for Celiac and a lot of informed parents and other people who have gone through these tests. If you post there, post the test results and the lab ranges. The main thing that I learned is that if you have a positive IgG (meaning above range), this means there is an intolerance to gluten, even if the entire celiac panel shows that there is not celiac. It is very common, especially in children, to get false negative test results. Both my girls are gluten intolerant with a positive IgG antigladian test. Also, if the IgA is low, this can mess up the test. Both my dd's have IgA results on the lower end. I hope that helps a little. Susan
ajcire Posted November 24, 2009 Author Report Posted November 24, 2009 Thanks! I was trying to read about it and things I saw were saying that high IGG wasn't necessarily anything but I think I am getting a little nervous now. I am having a hard enough time getting dh on board about pandas if I start questioning bloodwork the dr. thought was fine he will think I have really lost my mind. I might run this by my regular ped.... one of the peds in my regular ped office has been really great about being open minded but has also been honest about just not knowing enough about pandas himself... hopefully he can shed some light on the bloodwork for me. I don't know much about celiac but I know my ds doesn't have any stomach issues that I am aware of.... if this was my daughter I would be nervous because she tells me she has tummyaches all the time. http://www.celiac.com/gluten-free/index.ph...nfreeforum.com/ This is a great forum for Celiac and a lot of informed parents and other people who have gone through these tests. If you post there, post the test results and the lab ranges. The main thing that I learned is that if you have a positive IgG (meaning above range), this means there is an intolerance to gluten, even if the entire celiac panel shows that there is not celiac. It is very common, especially in children, to get false negative test results. Both my girls are gluten intolerant with a positive IgG antigladian test. Also, if the IgA is low, this can mess up the test. Both my dd's have IgA results on the lower end. I hope that helps a little. Susan
Suzan Posted November 24, 2009 Report Posted November 24, 2009 Thanks! I was trying to read about it and things I saw were saying that high IGG wasn't necessarily anything but I think I am getting a little nervous now. I am having a hard enough time getting dh on board about pandas if I start questioning bloodwork the dr. thought was fine he will think I have really lost my mind. I might run this by my regular ped.... one of the peds in my regular ped office has been really great about being open minded but has also been honest about just not knowing enough about pandas himself... hopefully he can shed some light on the bloodwork for me. I don't know much about celiac but I know my ds doesn't have any stomach issues that I am aware of.... if this was my daughter I would be nervous because she tells me she has tummyaches all the time. http://www.celiac.com/gluten-free/index.ph...nfreeforum.com/ This is a great forum for Celiac and a lot of informed parents and other people who have gone through these tests. If you post there, post the test results and the lab ranges. The main thing that I learned is that if you have a positive IgG (meaning above range), this means there is an intolerance to gluten, even if the entire celiac panel shows that there is not celiac. It is very common, especially in children, to get false negative test results. Both my girls are gluten intolerant with a positive IgG antigladian test. Also, if the IgA is low, this can mess up the test. Both my dd's have IgA results on the lower end. I hope that helps a little. Susan I highly recommend this book if you are interested in learning more about gluten intolerance. Most doc's aren't on board with this yet but I am so glad our Dan! doc understood the test results. Going gluten free really helped us but I know it's not an easy pill to swallow at first. Also, my oldest dd has neurological issues (anger and poor behavor) with gluten while my younger has gut issues. The list is really long of possible side effects from gluten. http://www.amazon.com/Healthier-Without-Wh...e/dp/0976853795 If you don't have the typical gut issues though, I can see where it would be tough for your dh to want to jump on board. Susan
ajcire Posted November 24, 2009 Author Report Posted November 24, 2009 Thanks you for that book suggestion. I am starting to get an uneasy feeling in my stomach now. My daughter (non pandas although she is prone to strep with classic symptoms and her behavior lately has had me concerned) has been complaining of stomachaches for a long time now.. almost daily. I asked 3 peds in our ped's office and basically they told me that I could try to eliminate dairy or wheat.. pick one and start if I wanted... I felt like it was just them not knowing what else to tell me and I was overwhelmed at eliminating either from her already pretty limited diet (typical picky eater). 2 suggested an elimination, one suggested just keeping a journal to look for a pattern... I see no pattern. I'm getting an uneasy feeling about all this. My son had allergy testing done last year... it was part of what the dr. did as far as complete bloodwork up... and everything showed fine but I am guessing that wouldn't show a sensitivity only an allergy? I highly recommend this book if you are interested in learning more about gluten intolerance. Most doc's aren't on board with this yet but I am so glad our Dan! doc understood the test results. Going gluten free really helped us but I know it's not an easy pill to swallow at first. Also, my oldest dd has neurological issues (anger and poor behavor) with gluten while my younger has gut issues. The list is really long of possible side effects from gluten. http://www.amazon.com/Healthier-Without-Wh...e/dp/0976853795 If you don't have the typical gut issues though, I can see where it would be tough for your dh to want to jump on board. Susan
Suzan Posted November 24, 2009 Report Posted November 24, 2009 Thanks you for that book suggestion. I am starting to get an uneasy feeling in my stomach now. My daughter (non pandas although she is prone to strep with classic symptoms and her behavior lately has had me concerned) has been complaining of stomachaches for a long time now.. almost daily. I asked 3 peds in our ped's office and basically they told me that I could try to eliminate dairy or wheat.. pick one and start if I wanted... I felt like it was just them not knowing what else to tell me and I was overwhelmed at eliminating either from her already pretty limited diet (typical picky eater). 2 suggested an elimination, one suggested just keeping a journal to look for a pattern... I see no pattern. I'm getting an uneasy feeling about all this. My son had allergy testing done last year... it was part of what the dr. did as far as complete bloodwork up... and everything showed fine but I am guessing that wouldn't show a sensitivity only an allergy? Deep breaths! It's going to be OK, I promise. You are right, allergy testing would not show an intolerance. I am allergic to wheat but my dd's showed no allergy to it and none of us can eat wheat. If you want more info, please PM me. I don't want to overwhelm you and I know there are probably others who know more than I do but we are a gluten free family for the past year and thriving on it. Take it slow and see how it goes. My younger dd was (is?) a picky eater. She actually started eating more food variations when we cut out wheat. Susan
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