Today's update

[FallingApart]

Hi all,

 

We are back at our local hospital for the IVIG. We have administered the IV abx which is called Ceftriaxone. We have 3 1/2 hours to go on today's IVIG.

 

Thanks Peglem for your advice on the anxiety med. We did use it and we did see effects. However, DD is just way too distraught and it was unable to help her at the time of the actual poke. She was beyond hysterical. Her actions were like that of one of her rages. Except that she wasn't raging, she was showing her emotions and was terrified. We had to stop several times because she kept jerking her hand. The first poke didn't work. The second worked in that they got the IV in but were unable to get blood from it. We had to wait until the Benadryl took effect before we could do a 3rd poke to draw blood. Of course she woke up and was hysterical at the third poke as well. Luckily the Benadryl put her back to sleep pretty quickly.

 

My expectations are both in the gutter and super high for this. I keep watching her like a hawk to see if there are any improvements. She has only been awake for an hour. So far she has been quite nice. But we see this every morning as well. Then, once something pis$es her off, she is in rage mode for the day. I did tell her no already about something and she didn't like it, but was able to get back on track. However, we are sitting in a hospital bed eating popsicles and watching movies so it might not be the best environment to judge in yet.

 

I'll keep you updated if I see any positive changes.

[thereishope]

I hope all goes well. Keep us posted.

 

Vickie

[faith]

good luck, I really hope this helps her. maybe a nice belated birthday present... happy birthday to her btw!

 

have a good nite,

Faith

[Buster]

Wishing you the best.