I really need some help

[melanie]

When you say sick sick, I'm assuming you mean you don't think he has strep. But how do you truly know that? As you see by so many kids in this forum, it can be be anywhere. Or what if he has a different infection hiding out somewhere? Was it your son that had the tooth infection? If so, perhaps that is still lingering in his body or blood.

 

I'm not saying to wait on the IVIG because of the money. Even if it was covered by insurance, I still wouldn't want to put my son's body and psyche through that w/o covering all bases (antibiotics). Not only that but if you go through the IVIG, do not get antibiotics after it, and you don't see improvement, you may then be facing docs saying something like it's not PANDAS because IVIG didn't work. When, in fact, the reason it didn't work is the lack of antibiotics. See how that can snow ball? I agree with Meg's mom. A doc that freaks out over a second opinion is not good.

 

What is your ped's opinion about being the one to prescribe long term antibiotics?

 

Im going to ask the pediatician about antibiotics He doesnt know about pandas he was willing to do IV monthly but doesnt know the dosage Ill call him monday I have my union talking to the insurance company Thanks for caring it helps

[melanie]

When you say sick sick, I'm assuming you mean you don't think he has strep. But how do you truly know that? As you see by so many kids in this forum, it can be be anywhere. Or what if he has a different infection hiding out somewhere? Was it your son that had the tooth infection? If so, perhaps that is still lingering in his body or blood.

 

I'm not saying to wait on the IVIG because of the money. Even if it was covered by insurance, I still wouldn't want to put my son's body and psyche through that w/o covering all bases (antibiotics). Not only that but if you go through the IVIG, do not get antibiotics after it, and you don't see improvement, you may then be facing docs saying something like it's not PANDAS because IVIG didn't work. When, in fact, the reason it didn't work is the lack of antibiotics. See how that can snow ball? I agree with Meg's mom. A doc that freaks out over a second opinion is not good.

 

What is your ped's opinion about being the one to prescribe long term antibiotics?

 

Im going to ask the pediatician about antibiotics He doesnt know about pandas he was willing to do IV monthly but doesnt know the dosage Ill call him monday I have my union talking to the insurance company Thanks for caring it helps

 

I sent a note to dr trifiletti thank you everyone I am so blessed you are all here I hope someday to tell you hes healing and be able to help others please pray for him

Melanie