Jump to content
ACN Latitudes Forums

Recommended Posts

Posted

I know ive read it a million times but whats the "dosage" 135lbs? Is it a good idea to do this while i wait for the ivig?

 

Melanie

Posted
I know ive read it a million times but whats the "dosage" 135lbs? Is it a good idea to do this while i wait for the ivig?

 

Melanie

 

If you are allergic to amoxicillan, do not take augmentin...it is amoxicillan + something that "augments" it (clauvu-something that I can't spell!)!!

Posted

If you are allergic to amoxcillin (or pennicillin) you should take Azithromycin. Didn't your son improve on Azith. before? But then your doc took him off for some strange reason?

Posted
If you are allergic to amoxcillin (or pennicillin) you should take Azithromycin. Didn't your son improve on Azith. before? But then your doc took him off for some strange reason?

 

 

Ok yes my mds all s--k Iam fed up with them One day you think great this guy gets it,Then well im back where I started. I am seeing the neurologist that did the iVIG at the end of aug,but dwouldnt do it again yesterday because the insurance comp challenged him.His a butt face!! He said that if its pandas he should be cures from 1 dose..Well not always doc!! Anyway my sons pediatrician said he will order the monthly IV he just doesnt know the dosages .Im faxing Dr.K his records today maybe he will talk to the pediatrician .So I am going to ask the neuro butt head if he will give him the zith so 500 mg a day for 2 months?

Posted
I have nothing at all to add as I don't know anything about any of that stuff.... but big hugs!! It is all so frustrating!

 

An

Posted

not sure how to help but to say - have you fullly investigated the abx allergy?

 

i was told by drs office that we needed to avoid penicillins. when i got his past records b/c of pandas, i see his first rash reaction was at 17 months to omnicef(which is a cefalosporin) and he was switched to augmentin. 6 months later, i forgot this allergy (i know - bad mom) - he was put on amoxicillin and got hives on his face and then switched to zithromax.

 

last Jan, at 4.5 was put on 5 days of azithromycin b/c postive throat culture after high titers. this was horrible - exacerbation of all pandas behaviors. a month later(and different ped) was put on 30 days of keflex - 100% pre-pandas. i believe they chose azith and keflex b/c i said he's had a reaction to penicillins.

 

now - it's safe to say he's had rash reactions to some abx but it is not what initial ped office told me to be wary of. i would say, if you haven't, get copies of drs and pharm records to be sure you know what exact abx the reactions have been. maybe you're more aware than me, but i was very surprised when, 3 years later, i saw the initial reaction was to omnicef.

Posted
not sure how to help but to say - have you fullly investigated the abx allergy?

 

i was told by drs office that we needed to avoid penicillins. when i got his past records b/c of pandas, i see his first rash reaction was at 17 months to omnicef(which is a cefalosporin) and he was switched to augmentin. 6 months later, i forgot this allergy (i know - bad mom) - he was put on amoxicillin and got hives on his face and then switched to zithromax.

 

last Jan, at 4.5 was put on 5 days of azithromycin b/c postive throat culture after high titers. this was horrible - exacerbation of all pandas behaviors. a month later(and different ped) was put on 30 days of keflex - 100% pre-pandas. i believe they chose azith and keflex b/c i said he's had a reaction to penicillins.

 

now - it's safe to say he's had rash reactions to some abx but it is not what initial ped office told me to be wary of. i would say, if you haven't, get copies of drs and pharm records to be sure you know what exact abx the reactions have been. maybe you're more aware than me, but i was very surprised when, 3 years later, i saw the initial reaction was to omnicef.

 

 

Thanks I remember the day when he took the amox and broke out in a rash The ped made us wait in the office to see if he would react to it and he did.He was on the zith but I couldnt get the md that prescribed it to continue .Wish me luck tring to get it today..

 

Melanie

Posted

Ok yes my mds all s--k Iam fed up with them One day you think great this guy gets it,Then well im back where I started. I am seeing the neurologist that did the iVIG at the end of aug,but dwouldnt do it again yesterday because the insurance comp challenged him.His a butt face!! He said that if its pandas he should be cures from 1 dose..Well not always doc!! Anyway my sons pediatrician said he will order the monthly IV he just doesnt know the dosages .Im faxing Dr.K his records today maybe he will talk to the pediatrician .So I am going to ask the neuro butt head if he will give him the zith so 500 mg a day for 2 months?

 

Yes, and continue on this dose long term (years) if you see a response.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...