Does active strep and low titers show it's not relevant?

[ajcire]

erica,

what did you mean when you stated above that your child does not hve PANDAS symtoms? do you mean right now?

 

 

Faith

 

 

Faith, I mean that my daughter who keeps getting strep with the sore throat and fever is not my pandas child. It's my son who I have pandas concerns about... usually when my daughter gets strep, my son also will get a positive culture.. usually his throat clearing increases and his irrationalness and quick angry response kicks in. Today he still seems ok to me... I almost feel like murphy's law has him seeming fine when I have an appt for bloodwork tomorrow for the titers and also if I get the cunningham kit in time... if I don't get the kit today I will cancel the appt tomorrow because obviously I want to do both blood draws at the same time so I don't have to stick poor ds twice.

 

Vickie, yes, I wasn't always so good with the toothbrush thing but when my daughter had strep in september I went out and stocked up on toothbrushes because it was being talked about on the board here which was a good reminder for me to get on that fast. They each have their own cup to keep their toothbrush standing up in so they can't touch each other and I use the disposable paper cups for them for rinsing. I need to buy extra toothpastes now too though. I am wondering if I should look into a toothbrush sterilizer for other times... and still replace them when I know they have strep... I hate to waste money on a sterilizer if they don't really help. I need to research that out. My ped said her tonsils don't look little and he doubts they are the problem but suggested it could be something to do with her adenoids. I had a speech therapist ask me if she had enlarged adenoids because of her nasal sound when she speaks so I guess it won't hurt for me to go anyway. I hate to put her through stuff that she doesn't need though but I hate for her to keep getting strep. Inbetween sept and now she did have a negative culture so I know it's not just that we didn't get it the first time.

[faith]

erica,

oh. so you are going to have the blood drawn for yur son who is the PANDAS guy? Are you planning to send your daughters sample in too? It might be a good idea to compare the two, since she is the one who gets the strep symptoms but you say does not display any PANDAS symptoms in the way of tics, ocd or behaviors? interesting....... they do send two vials, but you only need one, and the docs office could use one of their own. I would really think of doing it for you dd too, to give yourself and all of us a good comparison. I'm sometimes wondering if all kids are going to be in the range, I really want to see someone who is not symptomatic be tested and have a low score, thus proving that. I don't have any other kids, or I would have done that.

 

Faith.

[thereishope]

I went to an ENT for my older son to see if his tonsils were too enlarged and causing speech problems. The ENT said the are only seen as a hinderance in speech when they are so big it sounds like the person is talking with marbles in their mouth.

 

My older (non PANDAS son) still has his tonsils. My PANDAS son had his removed in Feb this year to try to prevent strep.

[ajcire]

erica,

oh. so you are going to have the blood drawn for yur son who is the PANDAS guy? Are you planning to send your daughters sample in too? It might be a good idea to compare the two, since she is the one who gets the strep symptoms but you say does not display any PANDAS symptoms in the way of tics, ocd or behaviors? interesting....... they do send two vials, but you only need one, and the docs office could use one of their own. I would really think of doing it for you dd too, to give yourself and all of us a good comparison. I'm sometimes wondering if all kids are going to be in the range, I really want to see someone who is not symptomatic be tested and have a low score, thus proving that. I don't have any other kids, or I would have done that.

 

Faith.

 

Faith, I completely agree with you! It would be interesting to see the results of my dd but my luck her number will come back high and put me into a panic. Actually though the real reason I won't be able to do that right now is because my husband is still having enough trouble with the idea of me sending in dh's blood. I think if I tell him I want to test her too that it might just put him over. I know that doesn't sound like a great reason but me getting to do this with my son right now is a big deal. It is definite food for thought though...

 

Vickie, the ped felt they would not suggest removing my dd's tonsils.. he felt that it was not likely the problem but an ENT would have a better idea of course.... it was her adenoids that the speech therapist suggested were enlarged... just said she had a nasally sound to her.. which is true. She does usually sound like she has a cold even when she is totally healthy. She was not suggesting they were the cause of articulation issues though and said likely she would grow into them... which was why I had not had it checked before... the speech therapist didn't think it was a huge deal.. just a possibility.