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Posted

Pixie had an ekg about 2.5 yrs ago because they first suspected Kawasaki's. She has periodic "unexplained" fevers that sometimes go up to 104 and have lasted as long as 10 days. She has a murmur, but things were otherwise normal, according to the ped who read it. We are looking at seeing a ped cardiologist to make sure things are still normal.

Posted

pixiesmommy,

 

Have you ever heard of/searched "familial periodic fever syndrome." I'm not sure that there is anything helpful there, but you might want to read up and see if there are any new clues.

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