jakio Posted October 2, 2009 Report Share Posted October 2, 2009 Hi everyone, Sorry my ignorance but I need clarifications: What is the Cunningham Test? who are where is dr. Latimer? has anyone heart of dr. Sayed Naqvi Pediatric Psychopharmacologist ? Thanks for all your answers. Link to comment Share on other sites More sharing options...
Suzan Posted October 2, 2009 Report Share Posted October 2, 2009 Hi, I hope this helps and anyone please correct me where I may be wrong since I know I am not the expert especially as far as explaining Dr. Cunningham's test.... What is the Cunningham Test? - Dr. Cunningham is a PANDAS researcher and has developed a test that measures CamKinase. Depending on the CK level, the child can fall into the PANDAS range which would indicate PANDAS but her tests are still in research and not yet funded for a full research project. I had my daughters tested and took this test results as confirmation of what I already knew which was that my girls both had PANDAS. Here are her two papers although not always easy reading. http://www.pandasnetwork.org/Cunningham.NMpaper[1].pdf and http://www.pandasnetwork.org/CunninghamJNICaMKinase.pdf who are where is dr. Latimer? - She is one of the leading PANDAS neurologists and she is located in Maryland near Wash. DC. has anyone heart of dr. Sayed Naqvi Pediatric Psychopharmacologist ? - No, I have not heard of this.... Susan Link to comment Share on other sites More sharing options...
peglem Posted October 3, 2009 Report Share Posted October 3, 2009 What is the Cunningham Test? Dr. Cunningham is a researcher in an immunology lab at the University of Oklahoma. She has developed a test for certain blood markers that she is currently studying to determine if this is finally a reliable lab test for PANDAS and Sydenham's chorea. This test is not commercially available and does not have FDA approval as a diagnostic test. Its just a blood draw for your child, so is no more risky than any other blood draw. But, what it has been useful for, for many here, is evidence that there is SOMETHING abnormal going on w/ your child in relation to strep. The biggest element of the test is a measurement of calcium/calmodulin Kinase II (CamKII) activation levels. CamKII is a sort of mediator/catalyst of neurotransmission found inside brain cells- so when its overactivated, it indicates abnormal/chaotic neural activity. The other things tested are antineuronal antibodies that are believed to trigger the over active CamKII levels. I'll let people who have more experience w/ Dr. Latimer answer questions about her- We've not seen her, but she was very kind in answering all of my pediatrician's questions and helping him to know what to do for my child (no charge!). We live in Phoenix and I believe she is just outside of Washington DC. Link to comment Share on other sites More sharing options...
Kayanne Posted October 4, 2009 Report Share Posted October 4, 2009 Dr. Latimer is a pediatric neurologist who was the head of pediatric neurology at Georgetown Univ. Hospital. She is currently in private practice. If you are accessible to the DC area, I would highly recommend that you see her. I do know that she will also consult with other doctors. Her office number is (301) 530-9200 Link to comment Share on other sites More sharing options...
EAMom Posted October 4, 2009 Report Share Posted October 4, 2009 here is an older thread on Dr. Cunningham and the blood tests http://www.latitudes.org/forums/index.php?...;hl=worried+dad Link to comment Share on other sites More sharing options...
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