IgG shots?

[peglem]

My daughter's pediatrician is running an immune panel on her in response to his discussions with Cunningham and Latimer. He called me this morning, all excited (he loves that he's finally figuring out what is happening to my child, and is finally going to be able to help her) because he got part of her test results- pretty severe IgA deficiency. Anyway, he was talking about an IgG injection, instead of infusion....I've never heard of this. Anybody know what he's talking about?

[kim]

Peglem,

 

I wish I knew something about the injections, I don't. I wanted to tell you though, for all of the posts that bring tears to your eyes this one was another. I'm SO happy that these Dr.s are willing to REALLY LOOK at what's going on with your baby and be excited to boot. I truly pray this will be the start of some major healing for her.

[ShaesMom]

My daughter's pediatrician is running an immune panel on her in response to his discussions with Cunningham and Latimer. He called me this morning, all excited (he loves that he's finally figuring out what is happening to my child, and is finally going to be able to help her) because he got part of her test results- pretty severe IgA deficiency. Anyway, he was talking about an IgG injection, instead of infusion....I've never heard of this. Anybody know what he's talking about?

 

Peglem-

 

I've never heard of the Igg shots. Could he possibly have been talking about something called SubQ? If your daughter has a pretty severe IgA deficiency you will need to be very careful with the IVIG infusions (if you can do them at all) because individuals with the IGA deficiency tend to have the more severe anaphylactic reactions.

 

You need to call the Immune Deficiency Foundation and ask them some questions about the Igg shots & Iga deficiency. Don't rush anything until you have some more info. 800-296-4433

 

Here is a link to one of their guides that talks about SubQ. Take a look at page 26. I'm not sure that this is what your doctor is talking about but it is the only type of injections I have heard about with the IGG.

 

http://www.primaryimmune.org/publications/...urses_Guide.pdf

 

Sam

[peglem]

Kim, thanks. Her doctor is amazing...he's the only one who has ever believed me, but he needed more evidence to get the help she needs. Its so fun (for lack of a better word) to see him light up with excitement when I bring him information. God bless him, and Cunningham, and Latimer, and .....all those people who are carrying on with this work in the face of naysayers and professional criticism.

 

Shaesmom, Thanks. That may be what he means, but i think he said once/month. We'll find out more when the rest of her labs come in, and that, hopefully, will make it easier to decide what to do.

[peglem]

Saw the pediatrician again today. I think he did mean the sub-Q. But we got the rest of the immune results- IgG4 is deficient. The other sub IgG's were low-normal. So he thinks we're headed for monthly IVIG. Still have to go through the immunologist to get it okayed and set up.

 

But, though total IgG and Iga (this is the 1st time we've checked subclasses)have always run just a tad low in the past...this time, the IgA was severely low and that IgG4 was very low also. What the doc is thinking (OMG, he's so excited!!) is that this time she was tested shortly after a strep infection, and that the strep is actually causing a reduction in her immunoglobulin levels. Anybody know of any research that might confirm or refute that?

 

I never thought I'd feel so good about finding something wrong with my daughter. Feel like I've won the lottery! Now...if we can get the immuno to cooperate...

[EAMom]

Wohooo!! So I assume that also means you should have no problem with insurance covering this?

 

But I also know nothing about Sub Q shots...it will be interesting to hear what Dr. Latimer has to say about this.

[peglem]

Yes, should be covered by insurance!

[ShaesMom]

Wohooo!! So I assume that also means you should have no problem with insurance covering this?

 

But I also know nothing about Sub Q shots...it will be interesting to hear what Dr. Latimer has to say about this.

 

SubQ is not shots. It is actually subcutaneous infusions that are usually done weekly rather than monthly over a few hours. It involves inserting several needles in either the thigh or tummy and infusioning the IVig. The benefit is that the immunoglobulins are received weekly rather than monthly so the doses are smaller which helps with side effects and because it is weekly it is believed the patient has more consistent serum level concentrations over time without the peeks of regular IVIG.

 

Peglem-call IDF and request a copy of the booklet "CLinical Focus-Subcutaneous IgG Therapy in Immune Deficiency Diseases" It is a free booklet. 800-296-4433

Hopefully, this will really help your daughter! Kudos to your doctor for caring so much!!

[Suzan]

But we got the rest of the immune results- IgG4 is deficient. The other sub IgG's were low-normal. So he thinks we're headed for monthly IVIG.

I never thought I'd feel so good about finding something wrong with my daughter. Feel like I've won the lottery! Now...if we can get the immuno to cooperate...

 

Wow, congratulations to finding this piece to the puzzle. This is huge!!!

 

Susan

[sf_mom]

FANTASTIC NEWS!!!!!!!!