Who Diagnosed Your Child With PANDAS?

[mk8898]

I checked off dd's pediatrician because we went to see him regarding her complete behavior shift in school, and at home...emotional lability, ADD, mostly obsessive thoughts that were causing her to not talk, tell on herself, and make decisions impossible.

 

My husband and his family have a history of anxiety/panic disorder and a little bit of OCD, so we were fully expecting him to steer us toward setting her up with therapy, after the typical tests.

 

The pediatrician said, "I don't want to open a can of worms, but there has been a suggested link to repeated strep infections and OCD and ticcing."

 

He said he would run the titers and other blood work, if the titers were high, and everything else was normal, then he would refer us to CHOP. He gave us the general idea of PANDAS, but he never used the word. He had even said that he had seen a case where a boy had began to have a severe arm tic after strep. When I asked him what/if any treatments there were, he said PEX.

 

In the meantime, we were to set her up with counseling.

 

Titers came back high...we went to CHOP...not very helpful...wouldn't give a PANDAS diagnosis because she had yet to show a waxing and waning pattern.

 

I found this forum that weekend; posted and got awesome advice about Dr. Latimer.

 

We went to a pediatric psychatrist who said it was PANDAS, and that same week we saw Dr. Latimer, and she treated with prednisone an prophylactic antibiotics.

 

DD is now showing no signs of PANDAS, and is currently on pen vk.

 

~Karen

 

We just finished about a 2 weeks ago our 30 day steriod burst and are also on Pen VK. Glad to hear not showing any signs. How long did your child go before diagnosed?