cunninghams test question

[ajcire]

Is there a link that explains this, a link that I could give my dr. regarding this?

 

Is there any reason to do this test if we are already treating this as pandas? Or is this strictly to help in trying to diagnose (and to convince my dh) ?

[sf_mom]

She does provide you with the paper she wrote that explains her findings and it is also listed on Pandas Network 'Micro Mini Cry'... sorry, I don't think its the exact name but you'll be able to locate the paper.

 

I found having the test results concrete evidence that this was 'PANDAS' and helpful when dealing with Dr.'s. My son's ASO titers were positive but only 244 and his anti- DNase - B were negative and the 'FIRST' immunologist said no proof of GAS infection so no antibiotics. Additionally, the results will also give you a perspective of where your child falls in the range of PANDAS. My feeling is that someday they might have a better understanding of how to interpret and what to expect based on the results. It will always be a good reference point.

[dcmom]

If you decide you want to pursue pex or ivig, having these numbers will be beneficial....

[EAMom]

Here are the 2 papers: http://www.pandasnetwork.org/Cunningham.NMpaper[1].pdf and http://www.pandasnetwork.org/CunninghamJNICaMKinase.pdf

 

Figure 3 on the second paper (JNI) is very helpful.