Strep with just behavior symptoms question

[ajcire]

I took the kids for cultures yesterday. Rapid results were negative. My dd had a sore throat, my ds who I believe to have pandas has had a very bad week with behavior and throat clearing.. Today I just got the call from the pediatricians office and I don't know if I should cry or be relieved. I mean, part of me is just relieved that ds did test positive. It's more concrete, I think that even though my dh won't say it.... I think he believes me now.

 

BUT this morning dd had said her throat was fine... I had her at the dr. yesterday so I sent her off to school... Ds had no real strep symptoms so I sent him too... he didn't even get why I took him to the dr. yesterday in the first place.. Ds must think I am crazy too. So normally when they have strep as soon as I know I keep them home till they have been on antibiotics for the 24 hours... that goes for strep for my ds too right? it's still contagious strep even though it's not affecting him that way right? I mean, I can't keep him home every time he acts a little off to me but now that I know?

 

 

When you know it's not your child's fault but you can't stand the behaviors... how do you cope with it? I feel so guilty for taking away some privileges from him when I now really know it was not his fault

[thereishope]

My kids do not get symptoms of strep. None of them. I only know to take them in when my PANDAS son begins with meltdwons, OCD, etc. He's had rapids come back + and once only the culture came back +. They are still contagious even when they don't have classic symptoms.

 

I send him to school until I get confirmation of strep. But then I keep him home until he's been on antibiotics for 24 hours. If he spreads it to the class, it may work his way back to him.

[peglem]

Well, I have to say it varied with me. I knew that my daughter had most probably already exposed everybody, so sometimes, as long as I felt she was able to manage, I'd send her anyway. Otherwise she would have been out of school way more, and she was already out plenty- b4 proph. abx, she was at the doctor at least every 2 weeks, sometimes as much as twice a week. Testing positive on a Friday was always good, then I didn't have to decide!

[ajcire]

It seems like a cruel joke that one of my children is very prone to strep and gets classic strep often and my other has pandas.

[Suzan]

When you know it's not your child's fault but you can't stand the behaviors... how do you cope with it? I feel so guilty for taking away some privileges from him when I now really know it was not his fault

 

I could have written this this morning. DD and I have been getting into it so badly. Sometimes it's hard to believe that she can't control herself. I wonder how much more I should be doing, how much less I should be doing, how strict, how understanding. But she's driving me crazy. This morning, I told her that her behavior was going to ruin our relationship. Now she's afraid I don't love her any more. I would give anything to take those words back.

 

Susan

[ajcire]

Susan, big hugs! My ds totally humilated me the other day when he was fresh to another adult. He had NEVER done that before. I reacted big time to it. It fits every mold of this though.. he didn't get he was being fresh, he was in argumentative mode... later on he felt awful. I felt awful. Now I feel even more awful. I wish that the adult it was to was one that was a close friend because I would have explained it as best as I could but there is no explaining this to people.. I dont' even get it. I don't want people thinking my child is that kind of kid because he's not. He's a really good boy when he's not in the mist of this.

 

 

When you know it's not your child's fault but you can't stand the behaviors... how do you cope with it? I feel so guilty for taking away some privileges from him when I now really know it was not his fault

 

I could have written this this morning. DD and I have been getting into it so badly. Sometimes it's hard to believe that she can't control herself. I wonder how much more I should be doing, how much less I should be doing, how strict, how understanding. But she's driving me crazy. This morning, I told her that her behavior was going to ruin our relationship. Now she's afraid I don't love her any more. I would give anything to take those words back.

 

Susan

[kim]

These comments made me think of something an adult poster wrote on the TS forum today. We as parents have a hard time figuring out behaviors, well it seems they're even hard for the person doing it to figure out. Here is the quote that I got a chuckle out of

 

I get into a lot of babbling, and there is a good bit of of syllable repeating going on (not sure if it counts as stuttering, it feels almost on purpose, but I can't help it that I'm doing it on purpose ... huh?).

[thereishope]

That's a good question. My husband thinks I let him get away with too much now that he's doing well. I admit, I do. I still see that boy who went through so much and I feel bad reprimanding not knowing if he will "gone" again tomorrow. I want him to be happy and I don't want to fight.

 

In a nutshell, during a PANDAS episode, I don't reprimand and I don't take away priviledges.The reasoning isn't there and he can't undertstand the cause and effect nature of taking away priviledges. Post PANDAS episode, I go back to regular parenting as much as I can, but I do let him get away with a lot more than I should.

 

When you know it's not your child's fault but you can't stand the behaviors... how do you cope with it? I feel so guilty for taking away some privileges from him when I now really know it was not his fault

[thereishope]

You have no idea how many times during a PANDAS episode my son embarassed me by spitting at strangers at Walmart when they tried to just say "hi" to him. That's humiliating.

 

 

Susan, big hugs! My ds totally humilated me the other day when he was fresh to another adult. He had NEVER done that before. I reacted big time to it. It fits every mold of this though.. he didn't get he was being fresh, he was in argumentative mode... later on he felt awful. I felt awful. Now I feel even more awful. I wish that the adult it was to was one that was a close friend because I would have explained it as best as I could but there is no explaining this to people.. I dont' even get it. I don't want people thinking my child is that kind of kid because he's not. He's a really good boy when he's not in the mist of this.