ABC News Primetime tonight

[NancyD]

Like your thinking, Vickie! I'm on it. I emailed Dr. Snyderman's producer earlier this morning and offered to get them the latest research, families for stories, suggested doctors to interview, and an overview of the struggles that many families face. I have worked with Today before like this (I worked with the producer who did the 11-part series on ASD a few years ago). In fact, that producer is now at CBS working for Katie Couric and I was thinking of emailing her too.

 

Nancy

 

Nancy, by any odd chance do you know where the reporter will be getting her info from? Did Beth inquire what the segment would contain? You said the book was only part of the segment. Would you suggest families contacting the network and express the need for various forms of treatment, symptoms, etc to be touched base on?

 

Personally, I think it will bring more attention to the disorder, but I don't think it would be an overnight revealtion of what these kids need. I still see a long struggle ahead...But it is a start.

[NancyD]

dcmom, it was Augmentum and psychiatric meds. That is why I wanted to get to the producer...so it is an accurate picture of PANDAS and how our children are affected, as well as the treatment options. I have seen many of Nancy Snyderman's reports on ASD so I worry about how she will do this story.

 

My only concern: I think that Beth's son was "cured" by a year or more of high doses of antibiotics (amoxicillan, I think). I am not sure if there was any more medical intervention involved, possibly puberty was a factor. I am just hoping this doesn't paint a picture that this is an easy fix with antibiotics. For some kids, maybe it is, and for some I think it is not. I just think I would like to see some info out there about IVIG and PEX, and how these procedures also cure kids.

[EAMom]

You rock NancyD!