Possible treatments for Crohn's when you have tics

[guy123]

Again my dr is saying I might have Crohn's and wants to start me on a trial of Entocort (Entecort? might be spelled wrong).

 

I've heard tics + steroids = massive exacerbation of tics so I really don't want to go that route.

 

There's also Pentasa (not a steroid) but I hear that can exacerbate tics, too.

 

Short of moving to CA and getting medicinal marijuana (which I am strongly considering doing and marijuana greatly helps tics AND Crohn's), what treatments are there for Crohn's?

[Chemar]

hello Guy

 

as mentioned before my son has Crohn's and has kept it under control without flare ups for over 2 years now with the following supps:

NOW Foods Boswellin with curcumin (extract from turmeric) and White Willow Bark as anti-inflamm and Slippery Elm to provide protective coating to the GIT. Also DGL-liquorice root chewable lozenges (must be DGL not plain) to promote healing of the ulcerated areas and fistula.

 

He drinks a lot of green tea with local honey as well

 

In addition he has a daily multivitamin/mineral shake by Jarrow called Multi Easy and extra Jarrow methylB12, as well as flaxseed oil

 

For his tics/OCD he also takes his Natural Calm ionic magnesium, P-5-P form of vitB6, vit D3 and Inositol

 

We got a lot of help re diet from a book called The Maker's Diet by Jordan Rubin, himself recovered from severe Crohn's. we didnt follow the diet to the letter but rather used it as a guideline

 

My son has learned by trial and error which foods are ok and which not re the autoimmune aspect of Crohn's. He no longer has any probiotics, yoghurt, kefir etc as it seemed to cause crohn's flareups and has obviously also cut out all things that promote inflammation (omega 6) as well as all immune "boosters"

 

hope that helps for you and yes... steroids can cause a major flare up in tics!

[guy123]

hello Guy

 

as mentioned before my son has Crohn's and has kept it under control without flare ups for over 2 years now with the following supps:

NOW Foods Boswellin with curcumin (extract from turmeric) and White Willow Bark as anti-inflamm and Slippery Elm to provide protective coating to the GIT. Also DGL-liquorice root chewable lozenges (must be DGL not plain) to promote healing of the ulcerated areas and fistula.

 

He drinks a lot of green tea with local honey as well

 

In addition he has a daily multivitamin/mineral shake by Jarrow called Multi Easy and extra Jarrow methylB12, as well as flaxseed oil

 

For his tics/OCD he also takes his Natural Calm ionic magnesium, P-5-P form of vitB6, vit D3 and Inositol

 

We got a lot of help re diet from a book called The Maker's Diet by Jordan Rubin, himself recovered from severe Crohn's. we didnt follow the diet to the letter but rather used it as a guideline

 

My son has learned by trial and error which foods are ok and which not re the autoimmune aspect of Crohn's. He no longer has any probiotics, yoghurt, kefir etc as it seemed to cause crohn's flareups and has obviously also cut out all things that promote inflammation (omega 6) as well as all immune "boosters"

 

hope that helps for you and yes... steroids can cause a major flare up in tics!

 

Thanks for the info. I'll probably ask you more questions in the future.

 

Interesting that you mentioned that probiotics and stuff caused flareups... that's been happening to me, too.

 

Boswalia is an anti-inflammatory, right?

[Caryn]

I have a friend who is 'cured' from Crohns via a specific diet through a clinical trial a few years ago. She is not on any meds and has no symptoms but eats a specific diet. I could put you in contact with her if you wish. She does not have tics.

She did have Crohns so bad that she needed to do emergency removal surgery of part of her intestines.