Has anyone tested for Lyme

[madhu]

Hi,

Has anyone tested for lyme?

I have been reading a lot of posts on the

BorreliaMultipleInfectionsAndAutism forum about lyme and Pandas and think I need to get checked for Lyme first.

Just wanted to know if anyone has done this ?

thanks

Madhu.

[dcmom]

yes, tested for lime as per neurologist. DD was negative. However, if you suspect lyme, be careful, the testing is not always accurate...

[Lisa1971]

Yes, we also tested for Lyme, also negative.

[sheeboo]

Yes, negative as per blood test but positive according to Lyme specialist per rash on the back of neck. There is only one test that has any level of reliability--the Western Blot from IGENIX labs in CA--and even then, if you've been on an antibiotic in the past year, chances are good the test will be negative because the spirochetes (bacteria) learn how to hide, seriously. Also, the antibodies, which the test looks for may only be present in the blood for a short time. The only way to really know is to go to a Lyme Literate doctor (and there aren't many! ), who will diagnose through history and symptoms.

 

Another aspect of Lyme is it is thought by some researchers to be transmittable through breast milk. I had Lyme prior to becoming pregnant.

 

Look at www.ilads.org (International Lyme and Associated Diseases Society) for more info....

 

Best of luck!

[colleenrn]

Do you think that being on Zithromax could potentially prevent Lyme's disease? I know they sometimes give Erithromycin to treat it, which is similiar to Zithromax.Three of my children are on prophylactic Zithromax for PANDAS. We have had the WORST summer EVER (and it just began) with ticks. I pull ticks off them every single day and our neighbor was just diagnosed with Lyme's.

Colleen

[dee45]

We tested for Lymes as well--negative

 

Deanna

[sheeboo]

I would urge everyone who lives anywhere where there is a large deer population to be skeptical of a negative Lyme test if it was the only source of diagnoses. Blood tests for Lyme are used ONLY for CDC reporting and not, in fact, as diagnostic criteria. This is a pretty good break-down of why the tests are so often false-negative, etc (from the Canadian Lyme Disease Foundation):

http://www.canlyme.com/labtests.html

 

A new documentary, "Under Our Skin," address many of these issues as well as the fact that it is in the best interest of insurance companies (many documented unethical relations between members the US Lyme Board and Ins. cos) to keep the CDC numbers low. I haven't seen the film yet.

 

Some more links to Lyme and neurological issues in children:

http://www.lymebook.com/lyme-autism-connection

http://www.canlyme.com/pediatric.html

http://linkinghub.elsevier.com/retrieve/pi...306987707005786

[pmoreno]

I think that it's still fairly rare because it depends largely on the area in which you are living. However, if anyone does test positive for it, they have been fairly successful treating it with cumandia (I had mentioned this herb in another post - but you can google it along with lymes and it should give some information about how they are using it as a treatment). Pat

[pmoreno]

I think that it's still fairly rare because it depends largely on the area in which you are living. However, if anyone does test positive for it, they have been fairly successful treating it with cumandia (I had mentioned this herb in another post - but you can google it along with lymes and it should give some information about how they are using it as a treatment). Pat

 

pardon the typo - its cumanda - not cumandia. Pat