myrose Posted June 2, 2009 Report Share Posted June 2, 2009 I read your blog about peanuts....are almonds considered to be in the nut family as well? I ask because we use almond milk, almond butter, dip them in dark chocalate sometimes for a treat or just eat plain. Link to comment Share on other sites More sharing options...
Caryn Posted June 2, 2009 Report Share Posted June 2, 2009 I read your blog about peanuts....are almonds considered to be in the nut family as well?I ask because we use almond milk, almond butter, dip them in dark chocalate sometimes for a treat or just eat plain. Myrose, According to Doug's book, all nuts are fine: almonds, pecans, walnuts, cashews (although these are ones that kids with nut allergies are highly allergic to, I know that), pumpkin seeds, and sunflower seeds. He stresses 'raw'. He says peanuts and pistacios are bad and of course any nuts that are 'rancid'-- old and stale. We store our nuts in the freezer and have never had a problem. Caryn Link to comment Share on other sites More sharing options...
myrose Posted June 2, 2009 Author Report Share Posted June 2, 2009 Are they okay until the date on the container? (if you just keep them in a cabinet and not the freezer) or should you freeze them at all times? Link to comment Share on other sites More sharing options...
myrose Posted June 2, 2009 Author Report Share Posted June 2, 2009 Caryn I forgot to ask before submitting my post....do you use a b-complex? I have heard that b-complex can be ruff on the tummy. Can you recommend one with the B5 in it? Thanks My daughter had a graduation ceremony tonight (from Kindergarten) and she seemed to be always rubbing her eyes. When I showered her after we returned home she seemed to have a rash starting on her tummy, and only on one side. This could be anything but being that the rubbing of the eyes was paired with it I was thinking allergies again. If the rash gets worse and is there tomorrow I will take her in to the doc. I would like to do a b-complex with the b5 in it though Link to comment Share on other sites More sharing options...
Caryn Posted June 2, 2009 Report Share Posted June 2, 2009 B5 is also called pantothenic acid. We are currently using Basic-B caps by Country Life. Our local Health food store runs specials on that brand once a month and we get 20% off on them. It lists: "vitamin B complex with extra amounts of B-12 and Pantothenic Acid." I use about 1/4 of a cap for my son who weighs about 50 lbs. It is a good amount for him.... and the caps last much longer that way. Too much B vitamins without enough magnesium will cause tingling in the hands and feet. I learned this the hard way a couple years ago when I bought a B cap brand that was much more potent than I needed. I think I read somewhere that fungal infections will also cause tingling too a while back. We have used other B vitamin brands and formulations. He used to have a problem with bruxism (teeth grinding) but this brand has really stopped it. I sometimes skip the vits on the weekends and he will almost always return to teeth grinding if he misses a couple days. Right now he is in the middle of a really long wane period and has not ticced since last fall. We adhere to the strict diet 100% and he is on board with that. He has eaten out a few times in the last couple of weeks and so far so good. I am also using the NAC every other day (in 1/3 cap dose) for low glutathione levels-- Caroline.N has written a lot about that. I think that was the missing piece for him. He was dxd with pyroluria and Dr. McGinnis responded to a recent email I sent him and confirmed a recent discovery that low glutathione levels are present in pyroluria due to oxidative stress. The low glutathione seems prevalent in Tics/T.S. So you should be feeding her foods high in antioxidants at the very least for a similar effect. Fresh fruit and veggies, raw unsweetened is best. Are you sure the rash isn't a yeast rash? When one of the kids has a dermatological rash of some kind I usually google it for images to see what it could be. All you have to do is type the word "image" or "picture" and then words to describe the rash "raised bumps" "flat" "pink" etc..... It is very helpful. Have you done the OAT test with Great Plains? (Organic Acid Test). It is very helpful in determining glutathione levels and also nutrient deficiencies (B's, C's, etc.....) The test will also tell you if there is a bacterial or fungal infection. It is a urine test. Link to comment Share on other sites More sharing options...
myrose Posted June 3, 2009 Author Report Share Posted June 3, 2009 WOW I have another long road it seems. I really hope we can get to the bottom of this before it gets really bad again. I will do one thing at a time. My daughter has always grinded her teeth (I have always as well but think I have stopped a fe years back) So to begin one thing at a time ....I can pick up the B-complex you mention....you also mentioned about not getting enough magnesium...do you give that separate or was that when you tried the other more potent brand that he experienced the tingling? In other words should I get some mag as well when I order the b-complex? Link to comment Share on other sites More sharing options...
myrose Posted June 3, 2009 Author Report Share Posted June 3, 2009 Caryn....I forgot to tell you that the first thing I did in regards to the rash is exactly what you recommended. (I googles rash images) I used a new all natural cream on her and I think it may be the culprit. She has not ate anything different nor was anything used as far as laundry detergent, soaps and shampoos. It has not spread and she has no fever...I have deceided though that if its still there tomorrow I will take her in to the walgreens care clinic after I pick her up from school just to be safe. I will also look into the test you mentioned as soon as I get the B-complex info and also get it ordered. I am taking one step at a time this time around as to not overwhelm myself. I have been waiting for school to let out to begin our journey... Thanks for all the helpful guidance and info! Link to comment Share on other sites More sharing options...
myrose Posted June 3, 2009 Author Report Share Posted June 3, 2009 Are these the ones you are speaking of Caryn? http://www.countrylifevitamins.com/moreinf...FTOKEN=97375639 You give the adult doseage to him? My daughter will be 7 in September and is about 48 pounds Link to comment Share on other sites More sharing options...
Caryn Posted June 3, 2009 Report Share Posted June 3, 2009 Yes, those are the ones. I give only 1/4 of a capsule a day and that is enough for him. You may need more if she has malabsorption. Just try and see. The tingling was my own experience and the capsules were a much higher dose than these. I was getting tingling in both feet when sitting and my hands at night in bed. My son weighs about the same as your daughter, a smidge less. I give the B vits in the morning with Kefir, orange juice, NAC (every other day), and zinc. He eats magnesium rich foods during the day but I do not supplement with mag in the morning. He also gets fish oil capsules. At night he gets Kirkman Labs Magnesium with melatonin (two caps--you can actually do up to three, I think, at that weight) and he goes right to sleep about an hour later. The Dan doc told us that the Bs at night might disturb his sleep and that magnesium relaxes you to sleep. He had us on this schedule in the beginning and although I have changed brands over time I never changed the schedule. I have tried taurine, inositol, and have used tryptophan when we were off all dairy products in the beginning. The thing that bothered me about these was my son's lack of appetite. When he had the chronic daily ticcing they did seem to help keep things mild. Maybe the poor appetite was just a coincidence. Anyway, he is eating great now with the supps he is on and is currently symptom free. Over time I have noticed a drastic change in the amount of vits he needs. In the beginning he was on much higher doses than he is now. You know, I never had him tested for a B12 deficiency, but it is funny how of all the B vits I have tried him on this one seems to suit him the best. Caryn Link to comment Share on other sites More sharing options...
myrose Posted June 5, 2009 Author Report Share Posted June 5, 2009 Caryn, I ordered the B-complex..its on the way. Lastnight was our 2nd night on only 15mg of Topamax. In five more days we will stop completely. Do you think I should wait until I give her the B-complex or start it when it gets here? I also will do the test you mentioned but as stated one thing at a time so I do not get overwhelmed again. She starts sensory therapy again next week so after that my next step will be that test you mentioned from white plains.....I have it bookmarked...but I think its called the OAT test or something....its the one you pointed out. Speaking of this test....what exactly as far as nutrient deficiencies did it concentrate on? All of them? And what benefit or should I say info did you receive that was the most helpful for you in regards to the test? Thanks Link to comment Share on other sites More sharing options...
myrose Posted June 5, 2009 Author Report Share Posted June 5, 2009 I also forgot to ask/mention that I see you are giving fish oil? I have some of this but never gave everyday or for a long period of time after I read of the possible increase in tics it caused for many. It never bothered him? as far as tics? What brand do you use? We have a brand from Natures Sunshine thats called Super Omega 3 EPA. Here is a link.....is it different from the one you use? http://www.naturessunshine.com/us/products...x?stocknum=1515 Thanks again Caryn! Link to comment Share on other sites More sharing options...
mom2a Posted June 5, 2009 Report Share Posted June 5, 2009 Hi saw your post, I wanted to mention that almonds have salicylates in them and salicylates can act as a trigger to TS so be careful there. As much as my son loves Blueberries, it's a huge tic trigger because of those darn salicylates. 3 years ago my son started to display the symptoms of TS and through key supplements and a food elimination diet (to find his triggers) he has been symptom free now for 3 years. He inspired me to start http://www.smallchanges.info and now we have evolved into a supplement line that targets key deficiencies http://www.desertwellnessinc.com . I know you were asking about B5....which are supplements do have along with DMG which enhances nuero function. My husband actually takes the children's formula but ups his dose to 3 instead of 1 and it has made a world of difference!! He also had to cut out sodas as the sugar and caffiene were big triggers for him. He is doing GREAT! Good luck on your journey, check us out if you have time!! Link to comment Share on other sites More sharing options...
Caryn Posted June 6, 2009 Report Share Posted June 6, 2009 Mom2a, You have a very nice website. I just wanted to say that it was my experience that too much vit B6 caused a salicylate sensitivity in my son. I had read about that online somewhere a couple years ago and decided to lower his dose. I noticed that your supplements have 75 mg of B6. For my son (less than 50 lbs) that is way too much. His dose is 25mg and he does just fine and no longer has problems with salicylates. We no longer do a separate B6 but use a B complex that includes adequate B12. We do a special low grain diet and avoid all artificials too, as your website suggests. Our son was diagnosed with Celiac and once his gut healed I noticed a huge change in his ability to absorb nutrients and was able to reduce or eliminate many supplements. We still do high Omegas, magnesium and amino acid supplements as needed. Our regime is pretty much anti-fungal but we go off the plantation from time to time. I agree with you that sugars and sodas are a big trigger. Corn is our biggest culprit over here and we avoid it like the plague. Caryn Link to comment Share on other sites More sharing options...
Chemar Posted June 6, 2009 Report Share Posted June 6, 2009 I have often wondered why my son (and myself plus older son) react to B complex with a digestive response(constipation) and spacy feeling? we can take multi's with all the B's in them, but if we take a single B co tab we suffer consequences. we have also been able to tolerate royal jelly queen bee supps, even tho it is loaded with Bs. son tolerates P-5-P better than B6 and he doesnt react well to too much niacin (beyond that in the multi) I guess it is the same with fishoil...it makes my son tic more but some people with TS seem to really benefit from it. He takes flaxseed oil instead, used in diet rather than a supp He feels lately he is sensitive to nuts, especially pnuts, more in terms of his digestive issues re Crohn's than re his tics. so he now avoids all nuts which is a pity as he used to benefit from the walnuts/serotonin Link to comment Share on other sites More sharing options...
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