Suzan Posted May 4, 2009 Report Share Posted May 4, 2009 I was requested to post the name of our neurologist but realized after that maybe I should put it in it's own thread. I live in Charlotte, NC. He is located in Concord, NC about 30 min away from N. Charlotte. His name is Dr. Corbier and he is a pediatric neurologist. He was recommended to me by my pediatrician who is a Dan! doctor and is the #1 recommended Neuro by their office to work with kids like my dd. I mentioned the 2 recurring vag. strep my dd had "just in case it was important" and he thought of PANDAS right away. Susan Link to comment Share on other sites More sharing options...
peglem Posted May 4, 2009 Report Share Posted May 4, 2009 I was requested to post the name of our neurologist but realized after that maybe I should put it in it's own thread. I live in Charlotte, NC. He is located in Concord, NC about 30 min away from N. Charlotte. His name is Dr. Corbier and he is a pediatric neurologist. He was recommended to me by my pediatrician who is a Dan! doctor and is the #1 recommended Neuro by their office to work with kids like my dd. I mentioned the 2 recurring vag. strep my dd had "just in case it was important" and he thought of PANDAS right away. Susan Did they do a vaginal swab to test for strep? My daughter has a history of vaginal infections, but we'd always assumed it was yeast. Now I wonder- the worst time was when she was not on antibiotics (had been off for @ 2 months). She was throat positive for strep at the same time, so was put on both antibiotics and antifungals. Link to comment Share on other sites More sharing options...
Suzan Posted May 5, 2009 Author Report Share Posted May 5, 2009 Did they do a vaginal swab to test for strep? My daughter has a history of vaginal infections, but we'd always assumed it was yeast. Now I wonder- the worst time was when she was not on antibiotics (had been off for @ 2 months). She was throat positive for strep at the same time, so was put on both antibiotics and antifungals. Us too.... She has a history of yeast problems since very young. So whenever she gets something strange going on there I assume yeast. The first time, it was a little different though, watery discharge, started wetting the bed and then an icky yellow discharge. Our Pedi swabbed her and said it was strep. The next time, it was exactly the same way and I had a full dose of penicillin left over so I just treated her. That was in February and then March (I think) of this year. Susan Link to comment Share on other sites More sharing options...
Lisa1971 Posted May 13, 2009 Report Share Posted May 13, 2009 Susan, I live in Matthews and found Dr. James Nelson of Presbyterian Pediatric Neurology is also very PANDAS knowledgeable, we have our second visit with him tomorrow...they have an office on 4th Street in Charlotte if that is closer to you...I use the Matthews office, and there is another one in Salisbury. --Lisa Link to comment Share on other sites More sharing options...
Suzan Posted May 13, 2009 Author Report Share Posted May 13, 2009 Susan, I live in Matthews and found Dr. James Nelson of Presbyterian Pediatric Neurology is also very PANDAS knowledgeable, we have our second visit with him tomorrow...they have an office on 4th Street in Charlotte if that is closer to you...I use the Matthews office, and there is another one in Salisbury. --Lisa Oh funny! He's our old neurologist. He's the one who first diagnosed my dd with her seizures. I was not happy with him after a while though for her seizure care because he was only interested in treating the symptoms of the seizures with meds and not trying to find a reason for them. He did find that she had a biotin deficiency but he did not seem too interested in hearing all of the malabsorbtion issues that I found with her other doc and treating her whole body. I'm sure this is just our experience though, I do know he is a very good doctor. I am glad to know that he is very knowledgeable of PANDAS! We need more of that! Susan Link to comment Share on other sites More sharing options...
kim Posted May 13, 2009 Report Share Posted May 13, 2009 Susan Interesting about the biotin deficiency. Could you say how that was determined. My oldest son had such a yucky case of cradle cap until he was probably 5 mo (?). It has also been talked about in some circles as being an effective candida fighter in conjunction with other treatments like GSE, nystatin etc. Since it requires healthy gut flora to synthesis it, I wonder how many kids are lacking in biotin. Quick easy reading article http://www.encognitive.com/node/1172 Long term use of antibiotics may prevent the synthesis of biotin in the gut by killing off the bacteria which help the body produce biotin. Supplements of lactobacillus may help the body make sufficient amounts of biotin after long term antibiotic use. Link to comment Share on other sites More sharing options...
Suzan Posted May 14, 2009 Author Report Share Posted May 14, 2009 Susan Interesting about the biotin deficiency. Could you say how that was determined. My oldest son had such a yucky case of cradle cap until he was probably 5 mo (?). It has also been talked about in some circles as being an effective candida fighter in conjunction with other treatments like GSE, nystatin etc. Since it requires healthy gut flora to synthesis it, I wonder how many kids are lacking in biotin. Quick easy reading article http://www.encognitive.com/node/1172 Long term use of antibiotics may prevent the synthesis of biotin in the gut by killing off the bacteria which help the body produce biotin. Supplements of lactobacillus may help the body make sufficient amounts of biotin after long term antibiotic use. Hi, I was not able to read the article yet but I look forward to it.... She was tested for biotin through a blood test. Our neuro at the time said that sometimes biotin deficiency can cause seizures. We don't know yet if supplementing with biotin has done anything for her seizures. Our neuro is more inclined to think the gluten was causing them. Either way, we have an EEG scheduled for June 1st to find out if she is still having seizure activity since she's been seizure free for a year. I have read that biotin deficiency is rare but I wonder too how rare it really is. My dd does battle candida too. By the way, my dd had bad cradle cap too when she was younger and it took forever to get rid of. I think she had hers until almost a year old. Susan EDIT... PS, I just read the article. VERY interesting! I may have to up my biotin supplements to try to get rid of my gray hair, I hope her neuro rechecked it in our last visit, I'm not sure. Plus, I think I'll get my other dd checked. She has some of the symptoms of deficiency as well. Thanks for the article! Link to comment Share on other sites More sharing options...
MMC Posted May 21, 2009 Report Share Posted May 21, 2009 I was requested to post the name of our neurologist but realized after that maybe I should put it in it's own thread. I live in Charlotte, NC. He is located in Concord, NC about 30 min away from N. Charlotte. His name is Dr. Corbier and he is a pediatric neurologist. He was recommended to me by my pediatrician who is a Dan! doctor and is the #1 recommended Neuro by their office to work with kids like my dd. I mentioned the 2 recurring vag. strep my dd had "just in case it was important" and he thought of PANDAS right away. Susan Thank you for posting the names of these dr's in the charlotte area. We live in the raleigh area, but my mother-in-law lives in charlotte and she was researching for pandas drs and called me to give me these 2 names...I then logged into this forum (am a new member) and saw your post! I now need a referral from my son's primary care dr...have an appt on 5/26, it can't come soon enough b/c his tics are horrible this evening and now has a grunting vocal tic. we are getting more nervous about this every day. I hope we can get an appt with Dr Nelson in the salisbury office, would be closer to raleigh area. MMC Link to comment Share on other sites More sharing options...
trixieford Posted July 7, 2009 Report Share Posted July 7, 2009 Susan, I am moving to Charlotte and have been looking for a Dan! dr... also, now looking at Pandas.. I was wondering the name of you Dan! dr in Charlotte, because I couldn't locate any info online... Thanks... Link to comment Share on other sites More sharing options...
Suzan Posted July 7, 2009 Author Report Share Posted July 7, 2009 Susan, I am moving to Charlotte and have been looking for a Dan! dr... also, now looking at Pandas.. I was wondering the name of you Dan! dr in Charlotte, because I couldn't locate any info online... Thanks... Hi! Here is their website.... http://www.carolinafamilyhealthcare.com/ We see Dr. Chris Jenny. He's the physicans assistant but is working really well with us. He has all the info on Dr. Cunningham's research testing for PANDAS and is willing to treat based on those results. Good luck and please let me know if I can help in any way. Susan Link to comment Share on other sites More sharing options...
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