New TS Mom says Thank you

[Chemar]

if you have found that gluten free is resolving things it may well be that was the primary trigger, tho it sure cant hurt to rule out strep as well.

my son's sudden and dramatic onset was so typically PANDAS that I took him to Shands to see Dr Murphy...but his titres and throat culture were -ve. We do have family history of tics, TS and OCD

[stacielynne]

Hi Everyone,

 

This is my first posting but I am thoroughly familiar with this forum. I just wanted to say "Thank You!" to all of you for sharing your stories and information with me. My daughter was diganosed in Oct 08 with transient tic disorder and in jan 09 with TS. Those first few months of watching her out of control with facial and verbal tic made me cry and feel helpless as a mother. I stumbled on this website while we were waiting for the neurologist appointment. I am so thankful I did. By being informed before the appointment, I was able to speak up while being handed devastating news. I said no to the drugs being offered and stated we wanted to try healthy alternatives first. Thanks to the information I found here I know we made the right decision. My daughter is doing great. The tics are greatly reduced only I seem to notice them. She has comorbid issues but they are more manageable. We owe it all to no artifical colors, flavorings and/or additives. We added a multi vitamin. We removed gluten from her diet. That seems to help the most with the minor OCD and Rage isssues. I just want to say thank you from the bottom of my heart. You all touch more peoples lives than you know. Thank you

 

 

My son is on the same diet and we are having the same results. He has been tic free for six months but, he still struggles with mild OCD and rage issues. I am very pleased with the results so far. He is also taking super immune space sprinkles. Its a natural way to help any yeast issue. I'm so glad your daughter is doing well.