Indigo Posted December 12, 2008 Report Share Posted December 12, 2008 My doctor changed dd's Azith to Amox this past weekend. She had an excellent three days on it until Monday when she fell apart--huge meltdowns, raging, it was awful! At the end of the day she admitted that she snuck a piece of candy out of our room, which had corn syrup in it. Now it's Thursday and she is not raging so much, but crying and acting like a two year old, using a "baby" voice and just melting down at the slightest thing. Her sensory issues are out of this world right now and she's more "autistic" than I have seen her in a long time. I can't figure out if this is residual effects of the corn syrup or if it is the Amox. Because at first the Amox seemed to be doing excellent--she even had two days where she slept past dawn! Any ideas for me? Link to comment Share on other sites More sharing options...
EAMom Posted December 12, 2008 Report Share Posted December 12, 2008 Okay, I'm not a believer in Amoxicillin for bad PANDAS cases. It didn't work for us. Do you think she could be worse b/c of the Amoxcillin (not doing much for PANDAS) vs. the corn syrup? You could try a dose of Advil? I would vote for going back to Azithromycin but I don't know how bad it was for your dd. Her "good" 1st 3 days on Amoxcillin could be b/c she still had enough Azith. in her bloodstream to control the PANDAS. Azith. has a long half life. Link to comment Share on other sites More sharing options...
Indigo Posted December 12, 2008 Author Report Share Posted December 12, 2008 I talked to my doctor today and he thought that we should go back on the prednisone to get her through the holidays. That's a huge relief for me because she responds so well to it, but I'm a little concerned because prednisone isn't supposed to be a treatment for PANDAS. Any thoughts? Link to comment Share on other sites More sharing options...
pmoreno Posted December 12, 2008 Report Share Posted December 12, 2008 I talked to my doctor today and he thought that we should go back on the prednisone to get her through the holidays. That's a huge relief for me because she responds so well to it, but I'm a little concerned because prednisone isn't supposed to be a treatment for PANDAS. Any thoughts? Well, its true that prednisone will help with inflammation, but its always temporary and you'd have to give a boat load of prednisone over a period of time to keep everything settled down which can be harmful. Prednisone is not a good long-term option. However, if its just over the holidays and it seems to work for her - then maybe its what you both need. As far as the antibiotics go, I guess every child must be really different because Gaby was doing so-so on the augmentin and when we changed her to zith she became very agitated - with occasional angry outbursts (something we haven't seen in a long time). We're now going back to the augmentin. Pat Link to comment Share on other sites More sharing options...
Indigo Posted December 12, 2008 Author Report Share Posted December 12, 2008 We haven't tried augmentin...is this really different from Amox? I will have to ask our doctor...she's still on Amox with the prednisone. Link to comment Share on other sites More sharing options...
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