Hooray! My son has food allergies!

[Guest M.C.]

After RAST blood testing, we've found that my son is highly allergic to eggs. He is also allergic to kidney beans, sesame seeds, and somewhat to milk products. I'm so happy that we now have something we can work with to contol the tics, which became heavy again by October. I read that egg allergy can be seasonal and can cross-react with the pollens from oak, ragweed, and members of the goosefoot family when they are in season. This makes sense, since his tics mysteriously have gotten worse every autumn.

 

Since cutting out eggs and dairy (mostly) for about 2 weeks now, we're beginning to see improvement during the daytime, although the tics get strong in the late evening. Of course, this could just be part of the cycle of waxing and waning of symptoms, but I don't feel that it is.

 

Does anyone know if these food allergies change from one food to another in the case of Tourette Syndrome,

 

and

 

if we keep him off the foods he's allergic to for several months, will he be able to eat them again without reacting to them?

 

To whomever is responsible for this forum, thank you from the bottom of my heart!

 

M.C.

[Claire]

MC, you might want to check the other "food allergy" thread running right now. I am going through the same search.

 

Some doctors think food allergies are uncontrollable. Some thing a year without the food might let the child outgrow them. Others try techniques to get them past them.

 

I am going to investigate various methods such an neuromodulation and environmental medicine approaches of food rotation, and will post what I find. But it will take me time to find doctors and see what works and doesn't work for my son.

 

I too am hopeful that this may bring positive results.

 

How did your doctor know what to test for with the RAST test? We asked for very specific foods--you sound like you tested for a spectrum of them.

 

Claire

[Guest M.C.]

Thank you, Claire. I sought out this naturopathic doctor specifically for the RAST test, as I met someone else who had had her daughter tested. Yes, she tested the whole spectrum. Insurance didn't cover it, of course, but it was worth every penny to finally get it done. I NEVER would have guessed the items he is allergic to on my own; I was suspecting other culprits. (I did have this amazing dream about a week before the results came back which, in retrospect, told me that it was eggs... but that's another story!)

 

M.C.

[Claire]

Ha MC re dreams--I do think the subconscious knows a lot!

 

Thanks for the info on the full spectrum RAST test--I agree it is worth it--otherwise it is a guessing game. I 'guessed' at 5 and got 2 right...it makes me wonder what else he is allergic too. Plus I never tested him for dustmites and I am 99.9% sure on that one (he is also). Now I wonder about pollens and molds. He had an intense reaction to his grandmother's house last week and I assumed it was the carpeting--maybe the synthetic fibers or some cleaner (he was sleeping on the floor there-ugh), but I suppose it could have been mold also. It aggravated all his neurological issues. It makes me realize how lucky we were to pull up all of our own carpets before he was born, due to my own dustmite allergies.

 

I do want to get a full spectrum of things tested--trying to figure out if I go to an AAEM environmental medicine doctor or a homeopath for that. I hadn't heard of naturopathic. This info is so overwhelming sometimes.

 

I think the provocation/neutralization skin prick test is effective, however my son would flip due to the number of pricks involved.

 

Thanks again,

Claire

[Guest M. C.]

I just wanted to give a progress report....

 

We've had my son off from eggs and the other allergenic foods since the end of December. For the first 3 weeks, there was little difference. Then, the tics started to subside. As of now, roughly 4 months from where we began, the tics can hardly be noticed, and there is no vocal tic whatsoever. He is taking NO supplements at all now, either.

 

This, however, is the usual waning period for his tics each year, so we'll need to keep up this record for a few more months in order to be sure the eggs were causing most of the problem. Fall will be the real test. I'll drop another line about what is happening in a few more months.

[Chemar]

that is great news MC......hope it continues and just gets better and better.

 

keep us posted.

[Guest M.C.]

Hi everyone. I'm just checking in to say that we made it through fall without the tics recurring. There are no motor tics whatsoever since he has come off the offending foods! Other symptoms are slowly fading, too. I have come to the conclusion that the tics were the results of neurological damage caused by something going on with the food allergies. I don't drop by this forum much any more, but I will say that it was wonderful having your support here when I needed you most. M.C.

[Chemar]

YES!!!!

 

what an encouraging post!

 

I am so very pleased for you and your son MC

[Claire]

Congratulations MC! You must feel so relieved and happy. Thanks for letting others know what an impact this had. I am going to add your name to the food sensitivity thread. Apparently, this is making a big difference for a lot of people--and I have compiled the names so that newcomers will realize what a difference it can make. Are you now rotating in the foods or doing complete avoidance?

 

The ongoing improvement could be other healing from removing the offending foods, such as reduced yeast overgrowth and increase nutrient absorption now that presumably the intenstines are no longer inflamed.

 

Something to consider:

 

I have heard anecdotally that certain enzymes can help children tolerate occassional 'infractions' of the foods and for some, even regular intake again--without a return of symptoms.

 

We had Klaire enzymes (which I wasn't really using) and just yesterday switched to Houston Nutriceuticals. They have one call AFP Peptizade that is effective with proteins--which should help with milk (and alsogluten, which isn't your child's issue), and I would hope egg, but am not sure.

 

This is something I think you might consider. I have read that even if you don't add back in the offending foods--which I can understand your not wanting to mess with--you can see improvement in symptoms. Below is info I posted elsewhere. Removing sensitive foods made a difference, the food restrictions got tough around middle school and I have been investigating other options.

 

From Claire:

 

http://www.enzymestuff.com/offdiet.htm

"User" feedback on the impact of enzymes on their children (ASD vs tic syndromes however) I really recommend reading this. Some people were better off with the enzymes and no diet restrictions than with diet restrictions. Anecdotal, but some of these stories really hit home.

 

 

Here is the storefront.

https://host6.websitesource.com/houstonni/M...t2/merchant.mvc

 

The product I am going to buy their brand and try it out.

http://houstonni.com/Merchant2/merchant.mv...Category_Code=E

 

Price: $22.00

 

An All-Fungal Protease Version of Peptizydeâ„¢

 

High-Potency Enzyme Combination for Digestion of Food Protein

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Odorless and Tasteless Version of Original Peptizydeâ„¢

Safe, Non-Toxic Alternative or Supplement to GFCF Diet

 

For those using Peptizydeâ„¢ successfully, there is no need to change to AFP Peptizydeâ„¢. AFP Peptizydeâ„¢ was designed for those who could not tolerate the original Peptizydeâ„¢ formulation.

 

AFP Peptizydeâ„¢ was developed in response to parents request for a high DPP IV-containing enzyme product that did not include fruit-based enzymes such as papain or bromelain. Like Peptizydeâ„¢, it is a combination of three different proteolytic enzymes isolated from fungal plant sources. Each enzyme has a unique set of peptide bonds it prefers to break, so the combination of these enzymes allows much more efficient means of quickly and thoroughly breaking down (hydrolyzing) proteins to its smaller components. The enzymes in AFP Peptizydeâ„¢ work only on food proteins, not carbohydrates, fats, or other compounds, and do not interfere with medications or other supplements (unless they are also proteins, which is extremely unlikely). AFP Peptizydeâ„¢ may be used in combination with other enzyme products, such as HN-Zyme Prime and or No-Fenol. One would use either Peptizydeâ„¢ or AFP Peptizydeâ„¢ for protein digestion based on 1) known sensitivities to papain or, 2) a child objecting to the odor of Peptizydeâ„¢ (which is due to the presence of papain).

 

The aminopeptidase enzyme dipeptidyl peptidase IV, or DPP IV, is able to hydrolyze and inactivate the exorphin peptide, casomorphin. However, for maximal protein breakdown, it is not useful alone, and should be combined with other proteases with different and less stringent peptide bond specificity. For this reason, AFP Peptizydeâ„¢ also contains two other fungal proteases with high activity in acid conditions. These enzymes are present in AFP Peptizydeâ„¢ in high amounts for the purpose of quickly hydrolyzing proteins while the food is still in the stomach. The ability of AFP Peptizydeâ„¢ enzymes to withstand the low pH of the stomach and remain active under acidic conditions allows hydrolysis of casein and gluten prior to entrance into the small intestine. Casein and gluten, in the presence of pancreatic enzymes in the duodenum, can produce exorphin peptides that may be readily absorbed from the intestine (these peptides are not absorbed from the stomach). AFP Peptizydeâ„¢ supplements the "normal" hydrolysis of casein, gluten, and other food proteins such that the exorphin peptides are not produced because the specific cleavage pattern to produce these peptides is altered.