Small improvement in PANDAS son..

[Pudgeo]

WE are seeing a small improvement in my 10 yr old son this week. He seems to have a little bit of his personality back. We still have alot of OCD and other stuff...I am hoping this continues(school is in 3 weeks!!)

I really started to load him up on supps a few weeks ago..I figured why not, it can't hurt him and as I added I didn't see any negative so this is what I gave him..

super nu-thera powder from Kirkman (like a multi-vitamin)

NAC

5-HTP

Omega-3 oil & Evening Primrose

Inositol

GABA

co-Q-10

Vitamin C & A

trace minerals

biotin(I foundout kids who are on Seizure meds need this)

calcium/magnesium at night

melatonin for sleep

LDN creme at night

lithium orotate(he was low in this)

zinc

SO I don't know if this can help anyone..I know it sounds like alot but I have all powders and I put it in pudding..

A good book is by Dr Bock..Healing the New Childhood Epidemics He has alot of info on supplements & PANDAS..

I really think it's a combo of EVERYTHING that is finally getting his system back inline..I hope!

SArah

[michele]

I am so happy you are seeing improvements even if they are small it is a step in the right direction! The only problem with giving so many supplements is it is hard to determine which are making the biggest difference. I am interested in the book you mentioned. Thanks for sharing because I had never read it before. I really want to find a way to repair the damage done to the brain area from this strep cross barrier into the basal ganglia. If you know of something recommended for this please let me know. I think from repeat exposure and PANDAS episodes this area gets inflammation and without repair the kids will have alot of these issues we are seeing with moods, OCD, quirks and tics. I am happy for you that there is progress being made. All the best.

M

 

WE are seeing a small improvement in my 10 yr old son this week. He seems to have a little bit of his personality back. We still have alot of OCD and other stuff...I am hoping this continues(school is in 3 weeks!!)

I really started to load him up on supps a few weeks ago..I figured why not, it can't hurt him and as I added I didn't see any negative so this is what I gave him..

super nu-thera powder from Kirkman (like a multi-vitamin)

NAC

5-HTP

Omega-3 oil & Evening Primrose

Inositol

GABA

co-Q-10

Vitamin C & A

trace minerals

biotin(I foundout kids who are on Seizure meds need this)

calcium/magnesium at night

melatonin for sleep

LDN creme at night

lithium orotate(he was low in this)

zinc

SO I don't know if this can help anyone..I know it sounds like alot but I have all powders and I put it in pudding..

A good book is by Dr Bock..Healing the New Childhood Epidemics He has alot of info on supplements & PANDAS..

I really think it's a combo of EVERYTHING that is finally getting his system back inline..I hope!

SArah

[sarahp]

What is IVIG?