Fatty Acid and Detox info for Claire

[Guest Jean]

Hi efgh,

 

Good to hear that Flax seed oil helps your son! What's the dosage that you give to him? Does his tic get worse initially? I haven't started Bodybio yet. I noticed that my son had "response" to both Body Bio and Flax seed oil (i.e., tics increased ). His tics are still up and down. I have sent an e-mail to my son's Ped. to ask for Fatty Acid test and heavy metal analysis. I would like to understand what he lacks (Omeg6 vs. 3), then I'll feel comfortable to restart the right one.

 

BTW, I do think the diet makes the difference. I have started introducing more fruits and other food to him, and his tics increase. Last night, after he had a grape fruit about 10 mins, he had head/arm tics couple times which he didn't have them for couple months. I still need to figure out which one triggers him.

[Guest Guest_efgh]

Jean, I give 1 tspn twice a day. I used to give a tblspn twice a day and now I reduced to tspn twice a day.

Initially for a week or so, when I started, it was worse but then it sort of got stabilised. But with this waxing and waning course, one never knows the cause. But one thing I noticed for SURE is that the flax seed oil DEFINITELY keeps him calm and more relaxed and less hyper. Also I removed total dairy and citrus for about a week or so and I noticed that his vocal tics have really come down. Don't know again if its a coincidence. Last week. I gave him a Pizza (full of cheese) and orange juice and I noticed that his vocal tics suddenly went up. So, as you said, there is a lot of link between food and tics but it really drives us crazy, figuring out why, what and when. Its very difficult to continuously stick on to a very strict diet.

A lot of discussion on the success of flax oil is in the braintalk forum. www.braintalk.org and a LOT of info on success of flax in http://neuro-www.mgh.harvard.edu/forum/ (you can give a search on tourette syndrome and flax).

But I do feel that the body bio oil balance is perfect and is worth a try and hence want to switch over.

We can control the food allergies but we can do very little about the environmental allergies like pollen, cold air, etc. So, slowly our kids should develop more immunity

[Claire]

Jean, We are in sync! I am having my son tested next week for fatty acids and heavy metal toxicity. After all the intense debate on the braintalk board on Omega3 vs Omega 6, and AA etc...I got pretty nervous.

 

I have to believe it is individual, and Jennifer found the right balance for her son. What she made me realize was that it isn't just a matter of adding flaxseed oil--rather the balance is key.

 

I am going to move my son away from the salicytes now, ie the grapefruit juice and the strawberries, and see what happens. The artificial stuff is gone from his diet (well, I can't say what will happen at school, ugh).

 

Claire

[Guest Guest_efgh]

Claire and Jean

 

What test are you going to make to test for fatty acids and metal toxicity. what is it called and is it done by a normal pediatrician or a special environmental physician?

Would appreciate your detailed inputs on that.

 

thanks.

[Guest Jean]

efgh,

 

Thanks for your info. on flax seed oil. Speaking of those tests, honestly, I'm still search for information and doctors.

 

Claire,

I got reply from my son's Ped. today. He doesn't seem to agree that there are direct or causal link with "heavy metal poisoning" (and "Fatty Acid") and tics. Would you mind to share how will these tests be done? blood or hair? What kind of doctor that ordered the test? At this point, I think that I should find a right doctor to ask for such test. Thanks!

[Claire]

Hi Jean and efgh,

 

Jean--Jennifer was the person I got that info from re heavy metal toxicity and fatty acids--I think she posted her comments on this thread (there are so many threads here).

 

efgh/Jean

We will meet with our own environmental medicine doctor next week, and I will let you know what he says

 

Sheila Rogers pointed me to this DAN list via email and I cross referenced it with the aaem list from a Latitudes article. http://www.aaem.com/referable_physicians.htm

 

The DAN list is great because it lists the areas each doctor is competent in, ie allergies and fatty acids, feingold. Don't worry about the autism part--these doctors are generalist. I wanted an MD because an MD is basically unlimited in what tests they can order compared to some of the others.

 

DAN list www.autism.com/ari. Click on DAN on the left, then practioner list.

 

Here is a random example from the DAN list:

 

Specialties: Psychiatry, Neuro/Child Psychology, Nutrition

Vitamin/mineral supplementation: Yes

Essential fatty acids: Yes

Gluten and casein-free diet: Yes

Diet avoiding food allergens and yeast: Yes

Feingold diet:

Digestive aids/Probiotics: Yes

Colostrum:

Transfer Factor: Yes

Antifungal pharmaceuticals and nutriceuticals: Yes

Secretin:

Heavy metal detoxification: Yes

IVIG:

Antiviral medications:

 

efgh, yes I read braintalk also, that is a good thread. I am delighted to hear that you are seeing some results from Feingold and the flax oil. I was trying to eliminate the salicytes today--but he had friends over and they all wanted apples. Did you ever start the no TV and what did it do?

 

My son just now fell asleep. Always 1 hour from when he lies down lately. Bummer. School will start again Monday--maybe exhaustion will bring easier sleep. At least he sleeps in, he never used to be able to do so. The first day back will be tough--his internal clock is way off.

 

Claire

[Guest Guest_efgh]

Claire

 

Yet to start NO TV. already too many restrictions on the poor child, so I thought I will do it step by step. As of now, he has agreed to watch TV for one hour a day. School will start tomorrow and anyway he will not have much time for TV from then.

 

Please let me know more on the environmental doctor and the tests once you do them.

 

How are your son's fears now?

[Claire]

efgh,

 

I understand about spacing restrictions, I am doing the same with my son.

 

My sons fears, which started with his strep throat (I still think it was strep due to the notice from school and my own symptoms--he said they barely touched the back of his throat with the swab--no gagging) improved incredibly with the medicine. He still gets smaller ones occasionally--of the same thing. I know that kids have fears, but they were worse on the visit with wall to wall carpeting--and we even stayed in the same room, so it wasn't a 'strange' place--he loves travel--which makes me think that environmental/allergy modifications may offer him relief.

 

Work starts tomorrow again, so I won't be posting so much!

 

Claire

[Guest Jennifer]

Happy New Year everyone!!!!

 

Just getting caught up with some of the posts. Just to let you know Body Bio offers a blood chemistry panel and a 67-fatty acid panel. The blood chemistry panel checks for minerals, bi-carb, ammonia..just to name a few things. The fatty acid test checks for 67 fatty acids. The most extensive test that my doctor and I have been able to find. They use a lab which is affiliated with John Hopkin's. The test kits finally came in last week and we're going to do the test this week. Both tests which include a full report and individual dietary recommendations is about $450.

 

When we get the test results back I'll let you know the outcome. We've backed off to about 1/2 tbsp. now and he is still doing great. Just tonight we were driving home and out of the blue he said "you know all my habits are gone..I don't have them anymore".... It was such a priceless thing to hear. I'm curious to see if at this point he is ready for fish oil (which has higher omega 3).

 

One more thing I'd like to add is that we did a hair analysis to check for heavy metal toxicity...our son was very high in heavy metals, however, not everyone may show that. Alot of the autistic population comes back with normal results because the body is not detoxifying..therfore, it won't show in hair. An important test to request with the toxic elements is the mineral analysis... alot of times if there is heavy metal toxicity the good mineral ranges are off. Also if the toxic metals are concentrated in the brain or bound tightly to organs and not circulating in the body there is controversy as to weather they would even show up in a blood test or hair analysis. Along with the test we also went to a homeopath who muscle tested for the toxicity. It is not an exact science, but it gives you some direction.

 

Jennifer

[Claire]

Jennifer,

 

Thank you so much for the details. I will print out the bodybio information and bring it to my son's new doctor on our first visit. I hope he is willing to try their tests--I always assume that doctor's have their own approaches that they feel are sufficient. I don't mind the costs of test at all, it would be worth manifold times that should we determine what is right. It is tough stopping the bodybio oil, but he doesn't want anything interfering with the tests.

 

That is such wonderful news about your son and him saying that his habits are gone. You are fortunate to have uncovered this path for him--obviously your efforts were right on target.

 

I hope we are so lucky, and that our doctor is supportive as yours is.

 

Claire

[Guest Guest_efgh]

Jennifer

 

Great to know that your son is doing well. WE ARE TOOO HAPPY FOR YOU.

You mentioned, you were curious to start off on fish oil. Do you mean to say that you want to start him on fish oil? Now that he is already taking body bio, why do you want to add fish oil too?? Sorry about my ignorance but want to make it clear.

Please give us the full details of the body bio test. I would be interested to experiment it. Cost is ok as long as we get some good outcome or direction

[Guest Jean]

Jennifer,

 

I am REALLY happy for you and your son. It's really great to hear what your son said. This is also a very encourage news for us. Please keep us updated the test results. I hope I will find a doctor who will support (/accept) the idea soon for my son.

[Guest Guest_efgh]

Jean,

you are right - its difficult to find a doctor who is sync with our views.

Ever since my son started getting tics 7 months ago not even a day he has been totally tic free. There are some days where his tics are low and somedays high. But he has had tics everyday. Jean, since your son also started getting tics recently, how is it with him? Have you seen him totally tic free for a week or so ever since he started getting tics?

[Guest Jean]

Hi efgh,

 

I have not noticed a tic free day so far. I always put my hope into tomorrow. With Jennifer's success, I am sure the day will come. We just need to have the strong faith and work on it (although it's hard sometimes).

[Guest Jean]

Jean,

 

Fish oil is excellent, but according to Dr.Kane's research only if the omega 6's have been stabilized, which is what we're hoping to do with the body bio oil. I was going over the info. packet again and basically any it seems that most cases of chroninc fatige, fibromyalgia, autism, parkinson's etc. are caused by neurotoxins which upset the fatty acid balance.

 

Here is an excerpt from the info. packet about the omega 6 and 3 balance:

 

"In states of toxicity it is paramount to stabilize omega 6 fatty acids and the lead eicosanoid (Atwell et al 1993) Arachidonic acid (AA) before introducing omega 3 lipids. There exists a crucial balance between omega 6 and omega 3 fatty acids in human lipid metabolism which has only recently been brought into clearer focus through the work of Yehuda (1993, 1994, 1995, 1998, 2000, 2002). His development of omega 6 to omega 3 FAs is 4:1.

 

AA, the lead eicosanoid, must be stable first along with the other w6 EFA's before w3 fatty acids are introduced and balanced. Clinicians are often met with poor patient outcomes when merely administering omega 3 lipids without first introducing omega 6 fatty acids, stabilizing the structural lipids, increasing the fat content of the diet , stimulating the B-oxidatin of renegade fatty acids, flushing of the gall bladder/biliary tree and supporting digestion of fats with bile salts and lipase.

 

The manipulation of lipid distortion involves two basic essential fats: omega 6 and omega 3. The body loses its ability to metabolize fats in states in toxicity and therefore becomes depleted in the eicosanoids and prostaglandins. Essential fatty acids are the precursors to the regulatory prostaglandins which are the "local hormones" providing the communication controlling all cell to cell interactions.. The human cell membrane cannot be supported nor its function controlled wothout respect to lipid substrate, yet faty acid metabolism has been poorly delineated in the medical literature."

 

Hope this is of help.

 

Jennifer