Chemar

[CSP]

Hi Chemar,

 

I don't know how many others are trying to research every avenue to make sure they have the correct dx for their child, but I know Faith and I are wondering how much diet induce tics. (Faith hope you don't mind me throughing your name in there.)

 

So could you tell us how long (time wise) you researched food, and what foods you took out of his diet that brought you to the conclusion your son's diet (healthy foods) has nothing to do with his ts.

 

Thanks... I think this will help me (and a few others) to be at peace with our findings when we come to them.

 

CP

[Chemar]

Hi CP

 

I havent ever said that a healthy diet hasnt helped my son's tics.........only that he does not have food allergies and so eliminating gluten/wheat/corn and dairy did NOT make a difference to his tics or OCD. Those were amongst the first things we checked for.

 

However his diet is very important and we have totally eliminated all food additives as he is very reactive to those (coloring, artificial sweeteners, MSG, high fructose corn syrup, preservatives and all other chemical additives)

 

we also use only organic foods to avoid any pesticides and obviously wont go near any gentically modified foods

 

since his Crohn's dx he has an even more careful diet, avoiding foods that promote inflammation or acidity

 

I am not sure what you mean by "how long" I researched. We had a doctor who ran tests. found no food allergies but suggested we try eliminations anyway which we did. All that helped was eliminating the chemical additives. Going gluten, corn and dairy free over a period of about 3 months did not.

[CSP]

Yep! "Three months" That is what I was looking for. Thanks so much.

 

I wanted a guide, and since my husband did not do any of this as a child, I'm using him as a guide too.

 

I think we sometimes just have to see to make sure, but some of us think our kids will tic no matter what we do.

 

My husband ts really confuses me sometimes. From all he has told me and what I have read in his baby book I can't believe his ts is really nonexistent.

 

Even the toxins he is exposed to at his job don't bother him. (Fire/storm/flood/mold damage)

 

BTW... Did your husband ever have a time (maybe in his 30's or 40's) that he felt symptoms were milder? I'm wondering because hubbies dad has been blinking/grunting a lot more in his late 60's/70's.

 

C.P.

[Chemar]

Hi CP

 

my husband's tics were limited to just facial grimaces and throat clearing for most of his adult life. It has only been since the car accident and likely due to the steroid burst with Medrol that his tics have re-emerged so. His OCD and depression/anxiety have been with him all his life tho, and he remembers lots of childhood tics

[bmom]

Something I was reading about diet and I am not sure where... I think an autism page about GFCF diet said that parents should give it 6 months as it may take that long for some. Ugh! I realize that is a long time before you see results. It also mentioned that for adults, they may have developed multiple food sensitivities and digestive enzymes may be the better route. Maybe that is an avenue you could ask your doctor about if you have no success with diet.

[Caryn]

In our case we were on the diet 5 months before we saw results. I think many may attempt to do the diet without testing (so they are not certain of particular allergies/intolerances) or they do it incompletely/incorrectly out of a lack of knowledge-- in a way 'sabotaging' a positive outcome when there might have been one.

But in Cheri's son's case, he has Crohn's disease. This is completely different from Celiac (which requires food avoidance and in many cases can CAUSE multiple food intolerances). The more I read and the more I learn the more I start to see chronic tics/T.S., Pandas, whatever you want to call it, as a secondary autoimmune condition that affects the nervous system in addition to another disease of the body (I am leaning toward gut issues). So much scientific evidence these days connect the gut to the brain. How the gut is malfunctioning depends on genetics, I suppose.

Maybe I'm nuts, but that is what I have come to believe.

Food matters. For sure.

Grannie was right-- we are what we eat and if what we eat is harming our body then it is toxic and will cause disease. If not, then no bother!

Bon appetit!

Caryn

[Chemar]

Call me nuts too but I so agree with you re the gut-brain connection Caryn....and ya know I think it all starts in the genetic makeup,.... even tho we still need Kim to show us just where

 

but yup, the brain gut thing is so very evident in my son and hubby....and have to say I know I feel lousy when I eat something not healthy for me.... and it *does* impact my psyche too, tho maybe in different ways to my 2 TS dudes. I know I have irritable bowel syndrome ONLY when I deviate from the healthy diet my son now has all of us on.

 

 

 

 

In our case we were on the diet 5 months before we saw results. I think many may attempt to do the diet without testing (so they are not certain of particular allergies/intolerances) or they do it incompletely/incorrectly out of a lack of knowledge-- in a way 'sabotaging' a positive outcome when there might have been one.

But in Cheri's son's case, he has Crohn's disease. This is completely different from Celiac (which requires food avoidance and in many cases can CAUSE multiple food intolerances). The more I read and the more I learn the more I start to see chronic tics/T.S., Pandas, whatever you want to call it, as a secondary autoimmune condition that affects the nervous system in addition to another disease of the body (I am leaning toward gut issues). So much scientific evidence these days connect the gut to the brain. How the gut is malfunctioning depends on genetics, I suppose.

Maybe I'm nuts, but that is what I have come to believe.

Food matters. For sure.

Grannie was right-- we are what we eat and if what we eat is harming our body then it is toxic and will cause disease. If not, then no bother!

Bon appetit!

Caryn