vg1119 Posted October 7, 2021 Report Share Posted October 7, 2021 (edited) Hey I’m new here. Have a 14 year old who is waiting on an evaluation for PANS/PANDAS. Back in august we had some type of virus. Most of us just had diarrhea and nasal congestion for a day or two. She ended up wiped out (slept 14 hours a days for a few days) slight fever, fatigue, vomiting, diarrhea, swollen glands and nasal congestion. The stomach symptoms lasted over 3 weeks and got better after a bland diet. The first week she was sick she started having pretty bad anxiety, intrusive thoughts, and kept feeling the need to say everything under the sun (in an ocd type of way) due to fear (which she know is irrational) that if she forgets to tell us something (these are about the intrusive thoughts, things she does in the moment, things that could have happened 8 years ago even things that don’t make sense to be concerned about) that we’ll be upset at her, also some emotional outbursts, sleep disturbances and feeling extremely tried. Primary doctor ran some blood work- all which came back negative, just wondering if there is anything that could be off that they didn’t check. Only things slightly off was potassium (slightly low) and bilirubin (slightly high), which is probably from stomach issues for 3 weeks. Her D has always been low (15-20ish) and she takes supplements for it . Primary doctor seems to be thinking after all of these being negative that she probably isn’t dealing with pans/pandas but is referring out to a specialist to rule it out. To me it just seems so in line with pans/pandas because of the sudden onset of the psychological symptoms the same time frame as being sick. This also has me questioning some other time frames of her life specifically when she was 8 (hand washing and a fear of accidentally lying - which resolved after a few months) and 11 (some ocd tendencies and an onset of sensory issues - ocd tendencies were around for a few months, sensory issues have continued to be a problem, emotional outbursts) neither was any where close to as bad as how she currently is. thank you and sorry if this is a repeat question. tests given: cbc metabolic panel Celiacs panel Lymes disease immunoblot Epstein Barr antibody panel Salmonella/ E. Coli/shiga toxin Ova and parasite smear ANTI-STREPTOLYSIN O c reactive protein t4 tsh Edited October 7, 2021 by vg1119 Link to comment Share on other sites More sharing options...
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