Mayzoo Posted December 20, 2020 Report Share Posted December 20, 2020 (edited) We have been seeing Dr. Rao since 2013. He is now backing out of treating PANDAS with antibiotics. We just tried to ween our kiddo off antibiotics and ended up in a flare that is similar to catatonia except with frequent screams. In the recent past we tried Dr Gonino and he stated prior to the appointment he would refill her antibiotics, but after the appointment refused to refill them. Anyone have any suggestions for semi-local (DFW and outlying areas) that will refill antibiotics? Edited December 20, 2020 by Mayzoo Link to comment Share on other sites More sharing options...
Chemar Posted December 23, 2020 Report Share Posted December 23, 2020 Hi Mayzoo Sorry to hear you are struggling to get medical help with the abx. I am not sure which areas are covered by this thread from before that lists some doctors that members found helpful for PANDAS etc https://latitudes.org/forums/topic/5023-doctors-we-have-seen-who-helped-with-pandas/ Link to comment Share on other sites More sharing options...
Stlaurenta Posted June 8, 2022 Report Share Posted June 8, 2022 Hi Mayzoo! We are looking for Deb and/or the nurse practitioner who used to work with Dr. Rao. Do you know how to get in touch with them? Link to comment Share on other sites More sharing options...
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