IVIG ocd pans pandas

[Robinhubb]

My daughter 15 is getting the monthly 3 day course of IVIG and she just left 3rd treatment. 
 

I hear how kids feel immediate results, but she is still struggling and sometimes after symptoms are worse. I have been told it may take literally 6 treatments before I know if it’s working but doctor is doing lymes test next.

 

so confused and discouraged

[Pennmom]

I am sorry to hear of your discouragement. My child has not had IVIG so I don't know, but I hope that you get some help from those who have experience with it. Hang in there.

[greekdude]

I have read the dose must be high e.g. 1.5g/Kg , some say 2g/Kg , for example if your child is 65Kg he'll need 100 to 130gr.

This is usually split in two days, so 50gr / day. And the rate should be predetermined by the doctor.

I have read frequent low dosage shots are not recommended.