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Robinhubb

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  1. My daughter 15 is getting the monthly 3 day course of IVIG and she just left 3rd treatment. I hear how kids feel immediate results, but she is still struggling and sometimes after symptoms are worse. I have been told it may take literally 6 treatments before I know if it’s working but doctor is doing lymes test next. so confused and discouraged
  2. My daughter 15 is getting the monthly 3 day course of IVIG and she just left 3rd treatment. I hear how kids feel immediate results, but she is still struggling and sometimes after symptoms are worse. I have been told it may take literally 6 treatments before I know if it’s working but doctor is doing lymes test next. so confused and discouraged
  3. Had house tested bad Theron had moisture. Cleaned it up, and the ac vents tested positive for aspergillosis. So we had all new duct work and a halo put in. It’s basically an ozone mold and bacteria killer. Still dealing with this.
  4. I’m just seeing this. I’m a night owl most nights too as my kids harm thoughts keep me up. So I’m in the Houston area. Frustrated to say the least. Cholestramine hasn’t done much. Now homeschooling and even I myself am having bad dreams of her hurting herself .. because it’s what I fear. I’m mad because bobs keeps denying IVIG. Any help would be great.
  5. We are a I’ll in the midst of finding the issue. Nothing visible but def something hiding. I’m pissed. Want to leave our house all together. We are broke and tired!!!! Thanks for the help
  6. So I just got a whole bunch of labs back and my kids and I all have might myco p and our levels of tons of molds were tested as well and the worst one which is Stachybotrys chart arum im frustrated!! Glad we have answers but do we move? What do we do? We can’t afford to move or be sick.. any advice
  7. I need some help. Some direction. So after seeing the new doctor in October and trying azithromycin, which didn’t bring mycoplasma levels down even a smidge after 3 weeks, he switched her to a antibacterial and augmentin. She took it for 21 days and I had her doing Epson baths, probiotics, vit c and watching diet and it only seems like it’s worse. The doctor did put in a order for IVIG and tonight the company called us to let us know bcbs denied it.. I’m so upset the biggest concerns are her hyperactivity because she is scared, her intrusive thoughts, and her ocd in general. Brushing teet
  8. Do u know what probiotic they used? My doc has us on bactrim...and after reading Dr. Garth nicholson's treatment looks like that is not a good treatment and the past 14 days have been worse since on bactrim
  9. Since DD has been diag myco p pans, they started her on bactrim 2x a day for 14 days then 14 off and so on ... she is just upset that it is not going away. I have a strict schedule for medicines so o follow protocal to a T!! Im thinking too, that she should have had more testing for strep side and other stuff. Just to be in the clear but she wasnt.. The doctor mostly tested lyme and myco p. Then the day before scheduled treatment, my daughter got another virus. This is all too much if i could take her thoughts away i would.
  10. Good morning I hope all my pans/pandas peeps are ok... Finally got my girl seen by a doctor who initially thought lymes but when getting blood work back it was neg for lyme but showed mycoplasma igg over 5 and igm over 4100. Doctor wants her on bactrim but making her get on tons of probiotics first. I think more testing should be done because she didnt look deep into other blood work..but i am relieved to finally see something thats actually there not just a crazy kid. Any insight would be great. She starts school monday and she wanted to start antibiotics already but
  11. Hey,

     I saw your posts on the blog and i have some questions.. 

    We moved into an old house, had to fix a lot of things a lot. But about a year and a half into living hear, new carpet, paint ect, i started having panic attacks at work, followed by ocd-intrusive thoughts, and anxiety . It gor so out of hand i had numerous mri scans of brain quit my job and lost myself . My husband has put up with it all but i have become mean and just not in tune. Fast forward, the beggining of this summer my 13 y o daughter after being sick said she has nightmares and harm thoughts and after finding a journal in her room, has had them since around the time i developed them. She said she didnt want to say anything. We did find mold in thier bathroom in which we cleaned. Litterally no mold in wall but was in a closet that couldn't breathe when the bathroom steamed up. Does this sound like enviromental? Im so scared. Everyone says im ancious but for both of us to go through this it doesnt sit right with me.

    1. wisdom_seeker

      wisdom_seeker

      Especially as this began at a similar time for both you and your daughter, it sure sounds like your triggers are mold.  Well....ok....I'm only 99.9% sure.   Don't liisten to naysayers -- the anxiety is almost certainly the result, not the cause.

  12. How did you find a new doctor that would listen and did they want Cunningham panel everytime?
  13. Im really struggling. We saw a dr who is referring us to a rheumatologist. However we have been waiting forever form an appt. This is the longest wait ever. I asked my daughter if she noticed a diff on aleve, nac, and oregano. She said not much but i could tell a huge diff with aleve only. I took her off Nac because she got moody. Tonight she was like mom, i feel like im getting bad thoughts from the right side of my head. She said she shakes her head because she just wants it out. Said she wants her brain back. She also says she forgets things she is going to say and she gets so u
  14. What strength and brand of cbd oil? I used cbd isolate with no diff..sending back for broad spectrum.
  15. I have looked online and looked through the posts but dont see many. The one near me makes you write a letter then based on thst he decides if you are a good candidate. First appt 1200+... im trying to find an integrated dr..i found neurologist but he wants a referral but how do you get a referral if no doctor believes you. Im in tears everyday. This is rough. I have a ppo why would he need a referral?
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