lyme with PANS doctors

[katrinajayson]

I have a child who has had lyme and recently been diagnosed with PANS.  Who is the best doctor for this combination of illnesses?  What are the alternatives to IVIG? Is the Cunningham panel the best way to diagnose?  thank you … I am new and a very worried parent.

 

[MaryAngela]

I would highly recommend an integrative MD...someone open to unconventional treatment but able to prescribe pharmaceuticals when needed. My DS’s doctor is an integrative psychiatrist who specializes in Lyme (although DS does not have Lyme). We also had luck with an integrative pediatrician.  Had some improvement with antibiotics, anti fungals (herbal and RX), but most dramatic improvement with IVIG.  DS has been receiving weekly then monthly IVIG for 18 months now. Yes, it was the Cunningham Panel that I believe got the IVIG covered.  

[katrinajayson]

thank you so much... can you tell me the name of your dr?  or email it to me katrina.jay8@gmail.com

I would take him anywhere.  how was ivig?  I am scared ….. its a blood product.

thank you very much.

[MaryAngela]

I sent details to your email, but the integrative doctors that I recommend are Donald Raden MD in Highwood, Illinois and Anju Usman MD in Naperville, Illinois. 

The IVIG has worked like magic.  His OCD symptoms were so severe his former psychiatrist said he was Schizophrenic.  He also had tics.  Since IVIG, his OCD is 80-90% gone and tics are gone.