Hello all,
I'm reading this forum for almost a year since my child DH was diagnosed with Pans caused by Lyme. You guys are inspiring and I learned so much here, though never posted before.
DH is 7 years old. She was diagnosed with PANS very early in the game (with vocal tics and some phobias but nothing more), but her Lyme was diagnosed late (probably 3 years in), with many co infections we're treating with ABX. Our main struggle so far was mainly with vocal tics and some minor motor tics. It wasn't fun but manageable.
6 weeks ago DH had her first IVIG, followed by a 2n