PANDAS - Hearing Sensitivity Treatments

[eacampbell67]

dd - officially diagnosed with PANS ( combo of lyme exposure, & strep)

current daily regime - zithrox 250mg, minocyline 100mg, 1000mg D3,  magnesium , NAC (1200mg) , probiotic, herbals -

she has extreme sound sensitivity - looking for some good treatments (homeopathic  & others) to give her some relief, any suggestions??

 

[jan251]

Zith and mino are known to be ototoxic (can increase hearing sensitivity issues).  Have they helped the other pans symptoms?  Maybe try an increase in NAC?

A separate issue, but D3 makes my panda worse, so we don't use that.

Edited November 27, 2017 by jan251

[bobh]

We also got slightly worse on probiotics (well tested, on and off many times), and suspected worse on NAC (just from one try).

You might try cutting some of the supplements out one by one and see any of them are a problem.  Interactions can also get really complicated when there are so many pills.

[Sirena]

For what its worth, I developed hyperaccussis--extreme sound sensitivity which responded to Aleve at prescription doses for 5-10 days or so to get it to calm down and if it starts to act up again, I go back on the aleve (naproxen sodium). 

[eacampbell67]

zithro and mino are helping with the other PANS symptoms so not sure if we want to stop yet - we are trying the stoping vit d for a few days and see what happens, we'll also then play with the NAC.  We've been told that her hearing sensitivy is related to inflamation still in her system, its been two months & we know recovery will take some time just looking for ways to give her some quicker relief