Subcutaneous IVIg

[alsmom]

Hi there,

My four year old son has PANS and we were told by his immunologist that he will need IVIg. We got a 2nd opinion and were told that subcutaneous IVIg (SCIg) is the better route to go because it has less negative side effects but just as effective as standard IVIg. Our immunologist said SCIg is not as effective as standard IVIg in his experience. Anyone have any experience with SCIg? Good or bad? Thanks!

 

 

[frikfrak]

Hi,

My DS (26) had 5 treatments subQ, he is mentally disabled due to lyme / babesia and who knows what else. Been treating for 7 years but no better.

The subQ did nothing, we were told by his immunologist that subQ also was better because less side effects but it didn't work.

frikfrak

[alsmom]

Thank you frikfrak for your reply! We really are concerned about having our toddler have to undergo the standard IVIg, but we don't want to waste time with subcutaneous either. Thanks again for sharing your experience!

[PAN-PANDAS-LYME-FAMILY]

Hi Alsmom,

I am looking for an immunologist for my PANS child. Would you recommend the first one that you went to who suggested ivig? Is he/she PANS/PANDAS friendly?