alsmom Posted May 20, 2017 Report Share Posted May 20, 2017 Hi there, My four year old son has PANS and we were told by his immunologist that he will need IVIg. We got a 2nd opinion and were told that subcutaneous IVIg (SCIg) is the better route to go because it has less negative side effects but just as effective as standard IVIg. Our immunologist said SCIg is not as effective as standard IVIg in his experience. Anyone have any experience with SCIg? Good or bad? Thanks! Link to comment Share on other sites More sharing options...
frikfrak Posted May 20, 2017 Report Share Posted May 20, 2017 Hi, My DS (26) had 5 treatments subQ, he is mentally disabled due to lyme / babesia and who knows what else. Been treating for 7 years but no better. The subQ did nothing, we were told by his immunologist that subQ also was better because less side effects but it didn't work. frikfrak Link to comment Share on other sites More sharing options...
alsmom Posted May 21, 2017 Author Report Share Posted May 21, 2017 Thank you frikfrak for your reply! We really are concerned about having our toddler have to undergo the standard IVIg, but we don't want to waste time with subcutaneous either. Thanks again for sharing your experience! Link to comment Share on other sites More sharing options...
PAN-PANDAS-LYME-FAMILY Posted June 8, 2017 Report Share Posted June 8, 2017 Hi Alsmom, I am looking for an immunologist for my PANS child. Would you recommend the first one that you went to who suggested ivig? Is he/she PANS/PANDAS friendly? Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now