marazion Posted August 8, 2016 Report Share Posted August 8, 2016 Hi, I'm new on here and wanted to introduce myself. I live in Germany and my daughter started having tics at 3 or 4 yrs. It started with some eye blinking, then waxed and waned, clearing throat, sniffing, shrugging shoulders, then got more complex so we had some bending down and funny walking tics at the beginning of the year at 7yoa. We also realized that she wasn't just being a tidy girl but went through phases with obsessive compulsive behaviour like putting things right but also touching hot things like light bulbs, pots and pans (ouch!). She also has had to repeat tics til they felt right or a certain amount of times. We were sent to see a neurologist in june because of eye rolling tic and staring spells. Eeg was normal, the 24 hr one we don't know yet. The neurologist isn't expecting anything from it, just making sure. She believes it's TS. We saw a wonderful psychologist, who also believes it's TS. She was ever so good with my daughter and wants to do more diagnostics to see where she needs some support and would like to see about habit reversal training. On Wednesday we will be going to see a TS specialist 2 1/2 hrs from here. I m very about it, we have been waiting since May. My daughter has always been much better in the summer, in fact we used to think tics had vanished over the summer. I m pretty sure now that we just failed to notice because we weren't as focused then. Last year around easter we thought it had all gone. She started school, the world was good until after half term when tics started flaring up again. What is it that makes her better in the summer? At the moment things are pretty calm, so one but me and my husband and herself notice her ticcing. She doesn't want to hear anything about it. She denies having tics, comes up with all sorts of excuses (that nobody asked for) is getting good at hiding them (which is a helpful skill) and just wants to pretend they're not here (I can so feel for her there). Do other kids do that as well? I know this is long...I just feel so comfortable writing on here because from what I have read people on here understand what it's like, unlike people around us, who try, but they don't. I have quite a few things mapped out to have my daughter checked upon (like hpu, nutritional defiencies, food allergies, heavy metal and lyme) after the appointment this week. And I would be glad to share and get some advice! One more question: do a lot of TS kids have hypersensitivity issues? Mine is struggling heavily with different aspects of clothing and has hypersensitive smell, hearing, seeing and emotions! Bye for now, thanks for letting me pour some out ;-) Link to comment Share on other sites More sharing options...
Chemar Posted August 9, 2016 Report Share Posted August 9, 2016 Hello What you describe could fit a TS profile as my son has hereditary TS and also had what his physician referred to as Tourettic OCD, with symptoms similar to what you posted for your son. Each person with TS (or other types of tic disorders) has that unique disposition that can result in different things triggering or alleviating tics...We found keeping a journal of what helped and what hindered really insightful! Re the hypersensitivity...yes many people with TS & other neurological disorders have it, and it is often termed Sensory Processing Disorder aka Sensory Integration Dysfunction. Great info at http://out-of-sync-child.com/ Also, consider getting Sheila Roger's book as it is an excellent resource to help you work through all this! http://latitudes.org/store/natural-treatments-for-tics-and-tourette-syndrome-book/ Hope that helps a bit. Link to comment Share on other sites More sharing options...
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