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Sensory issues and Bartonella


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We have been dealing with Pandas/Lyme/Bartonella for about five years now.

 

I have finally found an excellent practitioner who is doing a great job with my daughter. Her teachers are commenting how she really turned around.

 

However, there is one lingering issue, which I feel might have even gotten worse. DD is extremely sensitive to touch. She jumps when someone touches her lightly. Kisses are out of the question. Brushing her teeth is torture. She even hates it when someone touches her hair.

 

I know that extreme sensitivity to touch is related to bartonella; I've heard this from a recovered adult. However! We are really going out of our minds with this. Can anyone relate, or give me some tips for this? Is Occupational therapy at age 16.5 still an option and will it even work?

 

Is anyone dealing with this with their child; and have any tips? TIA

 

 

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I can completely relate. DD has spent 6 months unable to wear most clothing - says she feels like there's glass on her skin (akin to fiberglass I assume). For three months, she couldn't brush her hair, couldn't be hugged. We have Bartonella and Mycoplasma labs pending. I'll PM you.

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