Name that flare-- need opinions

[BeeRae22]

So, we have been weaning dd10 off of abx after nearly 2 years of treatment.... She was taking full doses of zith, Bactrim and Minocycline for a long time. We were successful in withdrawing the mino at the beginning of fall with no problems. About 3 1/2 weeks ago we stopped Bactrim. She has been "edgy" since then. The past 7-10 days or so, she's had several "episodes". To make this more confusing, we just confirmed that my ds7 has strep. Now I'm not sure if dd is flaring from stopping Bactrim, or if she's flaring from ds's strep, or both? What would you do? Wait it out and hope it doesn't get worse? Go back on Bactrim to see if that helps? I'm so tired of this roller coaster, I want off! And somehow, even though dd is 100x better than she was during her initial 8-12 month exacerbation, I seem to be almost having a harder time dealing with her now than I did then.... PTSD I guess. I also have a lot of other personal issues to deal with now too, but I just can't stand it sometimes- I really feel like I'm going to snap. My son is exhibiting classic pandas symptoms now too- but thankfully his symptoms have been mild and easier to handle (so far).

Please share opinions on what you think about dd's situation. I'm going to call her doc on Monday, and will take his suggestions but ultimately I'll need to decide.

I hope everyone had a nice holiday.... I'm so glad the majority of it is over- I really didn't know if I was going to make it through!

[BeeRae22]

I should maybe add also that dd never had strep- her trigger was myco p and maybe Bartonella.

[qannie47]

I would go back on abx for a couple of weels but have her tested for strep first. If you don't want to do abx and no strep..motion 3x a day for a week has help us in the past.

[rowingmom]

I would say that your daughter's bartonella has not been treated properly with the extended antibiotic protocol she has been on.

 

Bartonella is immune suppressive, so would make her more vulnerable to strep. The presence of one infection doesn't necessarily preclude the presence or inflammatory effect of another.