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Posted

Would you all recommend the book that they sell here to begin things at home? Or should I wait a bit since there could be something else completely neurologically wrong that has nothing to to with PANDAS. At this point, we just don't know, though she has all 5 of the PANDAS symptoms.

Posted

My son started showing signs of PANDAS about 1 month ago. I immediately ordered every source of info I could.

The online book about PANDAS from this website and both of Beth's books: Saving Sammy and Childhood Interrupted.

They were all immensely helpful in confirming my suspicions that my son has this disorder and in offering a direction to head.

In these conditions, more than others, you need to be the advocate for your child. You will need support to help you know to keep going. Good luck!!

  • 5 weeks later...
Posted

Also compare lyme and Bartonella symptoms. Many kids here started with PANDAS or PANS and ended up having Lyme and especially Bartonella being the cause of the symptoms. Strep can be a coinfection.

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