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sarojane

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sarojane last won the day on September 22 2015

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About sarojane

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  1. Hi, Apologies if this is a rehashed topic. Does anyone know of a Dr. or practitioner in the Chicago are who can interpret 23andme/MTHFR? Or a practioner who does this via Skype? Thank you.
  2. Also compare lyme and Bartonella symptoms. Many kids here started with PANDAS or PANS and ended up having Lyme and especially Bartonella being the cause of the symptoms. Strep can be a coinfection.
  3. We use biocidin and also Lauricidin.
  4. Igenex, galaxy, fry labs test.
  5. Bartonella. It's an epidemic. Causes OCD, rage, headaches, sore throat, neck pain, rash (like stretch marks or bumps) tons more symptoms. Caught from fleas, ticks, cats, dogs, lice.
  6. Hi, We are looking for an independent insurance policy that would actually cover some of this stuff like labs, etc, and dare we wish abx? Any ideas? We will probably be living in Georgia full time, but right now we are in Chicago. Thanks!
  7. sarojane

    Strep While on Penicillin

    I agree with Rowing Mom, my DD gets tonsillitis every 18 days, sometimes strep sometimes not. Positive Bartonella test. We started treating the Bart and Lyme with combo abx and herbs approximately 3 weeks ago. She has gotten tonsillitis while on Augmentin. This last fever/throat cycle only lasted 2 days instead of the usual 3-5. Her PANDAS symptoms have continually been going down since we started taking Japanese Knotweed, High CBD Hemp Oil, Burbur/Pinella, liposomal vitamin C, Oxylent, Bowellia Serrata over the past 9 months. I have heard it's a long road to recovery, so I am hopeful that she will keep improving.
  8. When my daughter was at her absolute almost worst, she let me do this. It helped tremendously. About two months after she was at her absolute worst and she was WAY too anxiety ridden to let me do it. I think she might be open to it again at some point. She is really tired of being sick.
  9. Can you tell me more about your children. My son was tested this summer with a +Bartonella test with Dr. B's office(working with his partner Dr. K). We started on Arithro and Bactrim and I saw an overall increase in his tics( with ups and downs) over the 1.5 months he was on these meds. In the meantime with did Igenex testing. We just got the results last week and they came back negative for Bart, inconclusive for Lyme, and + Erlichiosis. I am totally confused! The doctor could not explain the inconsistency. Prior to the recent results she did suggest switching to Doxy in case we were dealing with a different infection. Tics have slightly decreased overall, but continue to be up and down over the past 3 weeks on Doxy. Maybe these have nothing to do with the TBDs we may be dealing with. I just wish we could be sure we are on the right track. We have been dealing with motor and throat tics for over 3 years now:( I know we are all on a challenging journey...do you have any insights??? All I know is that we luckily got two positive tests, FISH and IGG IGM back on the first try for Bartonella from Igenex. I do not know what the a+ test is. I have heard over and over that it is very hard to get a result, and that is why Galaxy does the MWF blood draw. Is it possible the increase in symptoms are a herx? I would talk to Rowing Mom here on the forum her DD had Bart with tics and she ended up treating for Babesia as well, and then there was real progress with symptoms. Right now we are using Ceftin, and have a script for Mino and Ripfampin, and we have not started it yet. We are a little nervous about the Minocyclin and Rifampin side effects, have an appointment Monday and want to switch to Azith and Rifampin or Azith and Bactrim to start.
  10. Our daughter had 10 or 11 cases of tonsillitis (strep and non strep) before we tested for lyme and Bartonella. Both positive. Strep is EVERYWHERE, your kid and my kid and are just open to catching it. I would test. I wish I would of tested months ago.
  11. It seems more than coincidental that so many PANS/PANDAS kids have positive Bartonella tests . My kid's came back positive the first try. Not happy to have such an infection, but it helps to know what infection to fight.
  12. Hi, Well we got a script for 21 days for Mino and Ripfampin. Not sure whether it is going to be extended. Also using Biocidin protocol, and ordered Buhner herbs in case the abx is not extended and cannot find a Dr. This is an acute infection, why is this so difficult?
  13. sarojane

    PANS/PANDAS please help

    Be careful with l-glutamine. It is related to glutamate and Bartonella uses it to reproduce. Our daughter flares in the extreme from high glutamate, l-glutamine foods.
  14. sarojane

    PANS/PANDAS please help

    One thing you might try is to get the doctor to prescribe an antibiotic that fights lyme the next time, then try testing. This will bring out the lyme antibody and you will be more able to get a true test result.
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